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Subject:
From:
JOE YOUNG <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 25 Jan 1999 16:46:06 -0600
Content-Type:
text/plain
Parts/Attachments:
text/plain (186 lines)
Thanks Elizabeth.  It's hard to describe as I am a visual person and would
rather show Michael to you rather than describe him.  We need more room in
our house before we try anything like the lifts for wheelchair
accessibility.

I guess what I am really looking for is a picture of stuff that I could
rebuild for myself.  I am a good carpenter and I have a good friend who is a
welder.  Between the two of us we have made a couple of things that have
been helpful.

Joe Young
Remember that the Ark was built by amateurs and the Titanic was built by
professionals.

If man evolved from monkeys and apes, why do we still have
monkeys and apes?


-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]]On Behalf Of Elizabeth Hill Thiers
Sent: Sunday, January 24, 1999 6:13 AM
To: [log in to unmask]
Subject: Lifting child


Here's another one I'm reposting.

Elizabeth Thiers, OTR
email: [log in to unmask]
homepage: http://www.bv.net/~john/bethsot1.html

-
>
> There are hoyer lifts and other devices that can be rented out from DME
> providers.  There are also electronic walker lifts that can take a person
> from a wheelchair to standing (about $2000 in the Rifton catalog).  It
> would depend on what precautions he has and your needs.
> I hope that helps, it's so frustrating to try to help over the internet
> without actually seeing someone.
>
> Elizabeth Thiers, OTR
> email: [log in to unmask]
> homepage: http://www.bv.net/~john/bethsot1.html
>
> ----------
> > From: JOE YOUNG <[log in to unmask]>
> > To: [log in to unmask]
> > Subject: Re: Parent needing help
> > Date: Monday, January 18, 1999 3:57 PM
> >
> > Elizabeth:
> >
> > Thanks for your reply.  We live in a small community in north west
> Arkansas.
> > We do have access to therapy services for Michael.  However, up until
> this
> > time we were able to lift him by using his own spasticity to help.  Now
> that
> > he is relaxed we need some help in lifting the kid.  Until the surgery
> has
> > had time to heal a little, he can't do too much.  It will be another
week
> > before he is able to get in his walker again.  We are just trying to
> figure
> > out if there is anything out there to help lift and move him around the
> > house until he is able to help us more.  He will need to learn how to
use
> > his muscles again.  He is already crawling around the house on the
floor
> > using an army crawl.
> >
> >
> > Joe Young
> > Remember that the Ark was built by amateurs and the Titanic was built
by
> > professionals.
> >
> > If man evolved from monkeys and apes, why do we still have
> > monkeys and apes?
> >
> >
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of Elizabeth Hill
Thiers
> > Sent: Friday, January 15, 1999 5:14 PM
> > To: [log in to unmask]
> > Subject: Parent needing help
> >
> >
> > Joe,
> > Where do you live?  It's too bad the therapists haven't already helped
> you
> > with transfer skills.  Where is your son recieving services?  At school
> or
> > in a private clinic?  You may be able to convince your insurance
company
> to
> > get you some visits at a private clinic so that you and Michael can be
> seen
> > on a more individual basis.  I can't really reccommend good techniques
> > without actually seeing Michael and his skills.  There are several
> programs
> > that can assist mobility one of which is called the MOVE program that
> gets
> > people into a more vertical posture for many different skills.
> >
> > Elizabeth Thiers, OTR
> > email: [log in to unmask]
> > homepage: http://www.bv.net/~john/bethsot1.html
> >
> > ----------
> > > From: JOE YOUNG <[log in to unmask]>
> > > To: [log in to unmask]
> > > Subject: Re: ADMIN: signing off cpalsy
> > > Date: Friday, January 15, 1999 12:23 PM
> > >
> > > I'll change the subject gladly.
> > >
> > > My son Michael just got a Baclafen pump installed and he is gone from
> > being
> > > a 70 pound board to a 70 pound beanie baby in just one week.  We are
> > > thrilled with the results of the surgery and have good hopes of
> positive
> > > results with therapy.
> > >
> > > Here's my questions:
> > > 1) Any suggestions for devices to lift him out of bed or out of his
> chair
> > or
> > > vice versa?
> > >
> > > 2) We haven't learned from the therapists what kind of strengthening
> > > exercises he is going to need.  For those of you who have this, what
> kind
> > of
> > > exercises can parents do at home outside the therapy sessions that
> would
> > > help him develop strength in the various muscles he needs to develop?
> > >
> > > 3) Any other suggestions or warnings I need to be aware of?  Any
> comments
> > > that would be helpful to us as parents?
> > >
> > > Joe Young
> > > Remember that the Ark was built by amateurs and the Titanic was built
> by
> > > professionals.
> > >
> > > If man evolved from monkeys and apes, why do we still have
> > > monkeys and apes?
> > >
> > >
> > > -----Original Message-----
> > > From: St. John's University Cerebral Palsy List
> > > [mailto:[log in to unmask]]On Behalf Of Jasper van
Beusekom
> > > Sent: Friday, January 15, 1999 7:49 AM
> > > To: [log in to unmask]
> > > Subject: ADMIN: signing off cpalsy
> > >
> > >
> > > People,
> > > I think this mailinglist is slowly degrading to one where only the
> > > technical messages are exchanged. I have seen just too many
repetitions
> > of
> > > the same; individual good intentions and views on how to unsubscribe
> that
> > > all get close to what one really should do, yet don't work.
> > >
> > > >    [log in to unmask]
> > > >    (or LISTSERV@SJUVM1 if you're on BITNET)
> > >
> > > SJUVM isn't even on the internet anymore, that's for about two years
> > > already. Please, all unsub-requests to my personal e-mail, not to the
> > > list.
> > >
> > > If one wants to express care and help on another, please keep that on
> the
> > > topic of CP.
> > >
> > > Jasper
> > > Listowner

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