thanks, ken! I'm praying! How are you and Judy?
Hugs,
Mag
Tamar Raine
[log in to unmask]
Now serving tee shirts! and soon to come, Maui posters and other items;
www.cafepress.com/tamarmag
> [Original Message]
> From: ken barber <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 9/4/2006 10:31:29 AM
> Subject: Re: I'm new here - muscle stiffness
>
> i hope it works for you too. it has helped many, but,
> not for everyone. hope you will fall into the first
> catagory.
>
> --- Tamar Raine <[log in to unmask]> wrote:
>
> > kendall,
> > I'm going to be trying baclofen pump... finally got
> > xrays that show my hip
> > muscles are so tight they're pulling the joint all
> > wrong and that is why
> > I've got so much f000ing pain. Ii am on vicodin by
> > day, and endocet at
> > night for pain control. I really am praying the
> > baclofen pump works because
> > i dont know if i can take another year like this!!!
> > arghhh..
> >
> > Tamar Raine
> > [log in to unmask]
> > Now serving tee shirts! and soon to come, Maui
> > posters and other items;
> > www.cafepress.com/tamarmag
> >
> >
> > > [Original Message]
> > > From: Kendall David Corbett <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Date: 9/3/2006 5:39:29 PM
> > > Subject: Re: I'm new here - muscle stiffness
> > >
> > > Mary Katherine,
> > > =20
> > >
> > > Janet says:
> > > =20
> > > The balance and coordination issues sound a lot
> > like CP, and even if =
> > > it's not CP, you're dealing with the same issues.
> > When I was in my early =
> > > 30's, my functional abilities started to decrease,
> > so walking got =
> > > harder, the range of motion in my arms decreased,
> > and in general my =
> > > muscles were stiffer (or tighter). So I went to
> > my Doc, and got an =
> > > increase in my medication and in the course of 10
> > years, I got a walker, =
> > > a new (to me) drug, a neurologist, a baclofen
> > pump, and a really good =
> > > massage therapist/body work practitioner. Ask
> > anybody on the list, asnd =
> > > they'll tell you that aging makes CP harder to
> > live with, even at ages =
> > > that aren't generally considered to be "aging."=20
> > > =09
> > > =20
> > > I also found that "regular" PT wasn't that
> > effective. It was only =
> > > after I got the baclofen pump that I found out
> > what stretching was =
> > > supposed to be like. Now I can stretch and have
> > it make a difference, =
> > > in that my muscles won't immediately go back to
> > the "pre-stretch" state; =
> > > the same thing goes for massages. It seems that
> > "regular" orthopedic =
> > > docs don't quite know what to do with people with
> > CP, yes it's odd, very =
> > > odd but I think it has to do with experience.
> > They're used to dealing =
> > > with relatively straightforward problems, and CP
> > is complex, especially =
> > > as we age. =20
> > > =20
> > > You might try seeing a neurologist, as sometimes
> > muscle stiffness has =
> > > a neurological basis. You would hopefully get a
> > good work-up, and =
> > > perhaps a prescription for a muscle relaxant. I
> > know that if I didn't =
> > > have good pharmaceuticals, I would be curled up in
> > a ball so tight that =
> > > it would take a crowbar to straighten me out.
> > > =20
> > > Congratulations on finding a practitioner who
> > can help you - that's =
> > > half the battle. Good luck with your quest to
> > find more answers.
> > > =09
> > >
> > > Janet (and Kendall) Corbett=20
> > >
> > >
> > > ________________________________
> > >
> > > From: Mary Katherine Powers
> > [mailto:[log in to unmask]]
> > > Sent: Fri 9/1/2006 6:19 PM
> > > To: [log in to unmask]
> > > Subject: [C-PALSY] I'm new here - muscle stiffness
> > >
> > >
> > >
> > > Hello,
> > >
> > > I hope you don't mind my being on this list. I'm
> > new. I do not have
> > > CP, but I have issues with chronic muscle
> > stiffness that cause pain and
> > > make movement difficult. I'm doing physical
> > therapy for it. I was
> > > hoping to get some suggestions on dealing with
> > muscle stiffness that
> > > might help.
> > >
> > > what I can do is limited, so the stretches have to
> > be really gentle.=20
> > > I've tried doing stretches too hard and had a lot
> > of trouble moving
> > > after that. I've been told to take it easy and
> > build up slowly.
> > >
> > > I have chronic pain in my legs, back, neck,
> > shoulders, arms, and
> > > occasionally fingers. I'm overweight and I've
> > been told that although
> > > that does not help, it's not the cause of the
> > problem. I was told I
> > > was out of shape because people much more
> > overweight than I am have
> > > more mobility. I agree with this, but my muscles
> > have always been
> > > stiff. It's just the way I am.
> > >
> > > I can walk but it is difficult. I'm hoping the PT
> > will make it easier.
> > >
> > > Also, I was a preemie (11 weeks early) and I have
> > the typical balance,
> > > coordination, etc. problems. my vision is not
> > great and I have no
> > > depth perception. that really is not the problem
> > though, it's the
> > > muscle stiffness that gets to me.
> > >
> > > any suggestions on dealing with muscle stiffness
> > would be appreciated.=20
> > > when I tried googling it, all kinds of information
> > on all kinds of
> > > different conditions, like Parkinson's, came up,
> > none of which I have.
> > >
> > > another strange thing, and I was wondering if
> > anyone could comment, is
> > > that I've had no luck going to "regular" PTs who
> > were recommended by my
> > > doctors. they are at places like "sports and
> > spinal" and some other
> > > group, and they tend to be very cursory, don't
> > understand what I'm
> > > talking about, and then circle a couple stretches
> > on a piece of paper
> > > and tell me to do them, and usually I can't do the
> > stretches they want.
> > > It's weird. I went to someone today at a place
> > called Pain and
> > > Rehabilitation Medicine and I spent $250.00 for an
> > appoinment that
> > > lasted about an hour. It was like night and day -
> > he was excellent.=20
> > > he does not take insurance and still he has a
> > waiting list about 2
> > > months long.
> > >
> > > Any experiences like that, where the "regular" PT
> > places recommended by
> > > doctors just don't work? I find that odd, like
> > they should know a bit
> > > more about what they are doing.
> > >
> > > thanks,
> > >
> > > Mary Katherine
> > >
> >
> ________________________________________________________________________
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