Kathy Jo,
You are a young woman and yes, have mobility limitations because of cerebral
palsy, BUT you should not be eating baby food! You need occupational and
physical therapy to maximize your mobility and life skills. You need speech
therapy to learn how to chew and swallow without choking. You need to see a
podiatrist or orthotist to see what is going on with your feet. All of
these health issues don't sit well with me, nor make little sense to me.
You should be able to receive these services where you live. If you can't,
then where you are living is not meeting your personal and health needs!
In my humble opinion, it would seem to me that you are not receiving proper
care.
Linda
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Anthony Arnold
Sent: Sunday, April 03, 2011 7:20 PM
To: [log in to unmask]
Subject: Re: Kathy Jo Pink
Kathy Jo, I know you have experienced some mental issues in the past, but
how did you get so bad? Were you refusing basic personal care services? I
know I have met at least your father, I feel you come from a supportive
family probably willing to do anything for you.
I know I have experienced my own issues especially last year. Sure I was
bent out of shape, and tried counseling for a while until realizing it was
what I was dealt with, and I have a lot more positive stuff to focus on and
several people who care about me and in return I care about them. Most don't
have my blood and even my last name, but they are all I got at the moment.
No one's life is 100%, and I don't know why we even try or who thought of
that in the first place, that's a load of garbage, we have to be happy with
what we have and focus on the positive and less on the negative.
I only quit counseling because I was tired of continuously reliving what
went on with a certain member of my family; it was out of my control in the
first place. Once I got this out of my system, I became alive again. I'm not
suggesting for anyone to do what I did, I just have a lot of friends and
personal wisdom.
Thanks,
Anthony
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Kathy Pink
Sent: Sunday, April 03, 2011 5:22 PM
To: [log in to unmask]
Subject: Re: Kathy Jo Pink
I need to eat baby food because I can't chew and for my bowels. KJ
> Date: Sat, 2 Apr 2011 11:43:28 -0700
> From: [log in to unmask]
> Subject: Re: Kathy Jo Pink
> To: [log in to unmask]
>
> Kathy jo, Why has the doctor said you can't bear weight? Why are you
> needing to eat baby food? something is defintely wwrong in how they
> are caring for you! I would ask for an OT to evaulate your ability.
>
>
>
> Thanks,
> Tamar
>
> ~~~~~~~~
> First they came for the communists, and I didn't speak out
> because I wasn't a communist.
> Then they came for the trade unionists, and I didn't speak out
> because I wasn't a trade unionist.
> Then they came for the Jews,
> and I didn't speak out because I wasn't a Jew.
> Then they came for me
> and there was no one left to speak out for me.
> ~~Pastor Martin Niemoller~~
>
>
>
>
> ________________________________
> From: Kathleen Salkin <[log in to unmask]>
> To: [log in to unmask]
> Sent: Sat, April 2, 2011 11:17:10 AM
> Subject: Re: Kathy Jo Pink
>
> Agreed. I work out using dumbbells cycler, and a floor mat, My body
> is in much better tune and I am more active now than a year ago. I am
> wondering, Kathy Jo, if there are any physical therapists at your
> facility - if so, can you and your doctor set up a fitness program so
> you
can stay in shape
> better? It does help.
>
> Kat
>
> On Sat, Apr 2, 2011 at 1:32 PM, Anthony Arnold
<[log in to unmask]>wrote:
>
> > Kathy, I was thinking the same thing. Aren't there any
> > physical/occupational therapy services where you are at currently? I
> > know for a couple of years now, I have been going to a personal
> > trainer where I have truly benefited from. I have lost a great deal
> > of weight, and it's surprising to see how much easier it is for me
> > to transfer and move around.
> >
> > I will keep thinking of you.
> >
> > Thanks,
> > Anthony
> >
> > -----Original Message-----
> > From: Cerebral Palsy List [mailto:[log in to unmask]] On
> > Behalf Of Michael H Collis
> > Sent: Saturday, April 02, 2011 12:11 PM
> > To: [log in to unmask]
> > Subject: Re: Kathy Jo Pink
> >
> > Kathy, Doesn't your body tell you when it needs to void? What
> > happened to your ability to bear weight on your feet? What place
> > are
you at?
> >
> >
> > -----Original Message-----
> > From: Cerebral Palsy List [mailto:[log in to unmask]] On
> > Behalf Of Kathy Pink
> > Sent: Saturday, April 02, 2011 12:19 PM
> > To: [log in to unmask]
> > Subject: Kathy Jo Pink
> >
> > Hello listmates:
> >
> > I need to vent. I have been in diapers since November. I, suddenly
> > wet and need to be changed every half hour. (deep cry!) So, yeah, I
> > am just like a newborn baby---potty wise. Where I live, they only
> > like to change people's diapers every two hours. Everyone that
> > lives here wears diapers.
> >
> > Also, I have lost the ability to bare any weight on my feet. (due
> > to a stupid doctor order!) So, I need to be carried. They have
> > started last weekend to have two staff on during the day because of
this.
> >
> > I, also, started needing to eat baby food.
> >
> > What's next, dear friends? I'm ttrying my best to keep positive .
> >
> > -----------------------
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