You must be referring to Reflexin, other pain killers are Ultram and Vicodin.
they are quite addictive for some people.
Bobby
>I have not been in this situation, since I am not with CP. But I do have
>possible fibromyalgia, and boy the pain can get intense especially in the
>hips and lower back. I have ended up taking Vioxx during the day and a very
>strong medication at night, can't remember the name of it, but it keeps me
>groggy most of the time.
>My suggestion to you is get a second and third opinion, and do what your
>heart is telling you. They have been wanting to inject my neck with
>anesthesia since my car accident last May, but I still say no and live with
>the pain, It is just to scary things doctors want to do these days.
>Deborah mom of 4
>----- Original Message -----
>From: - Joy - <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Thursday, May 04, 2000 2:03 PM
>Subject: Re: Just Checking
>
>
>> Here's a repeat of my original post, for those of you that asked. For
>those
>> of you that didn't, sorry to make you read it again...
>>
>> I've been experiencing really bad pain in my right hip and right lower
>back
>> lately. Since I was never weight-bearing, both of my hips were
>dislocated.
>> When I was 3, I had surgery to put them back in their sockets. The left
>one
>> stayed in, but the right one came back out. Since I was born, I've been
>> going to the same orthopedist, who had a very wait and see approach to
>> treatment. He said that as long as it didn't hurt, we didn't need to do
>> anything.
>>
>> About two months ago, I started to have excruciating pain in very small
>> spots, on my hip and back, the dislocated side. My old orthopedist had
>> retired, so we went to see Dr. Paul Sponseller, the head of orthopedics at
>> Johns Hopkins. He took some x-rays, and gave me a few surgical options.
>> First, they could remove the pin that's no longer doing anything. That's
>a
>> quick in-out surgery, but he doesn't think it'll fix the problem.
>>
>> Second, they could cut away the part of the hip that's extending above the
>> pelvis in its dislocated position. This would probably stop the pain, but
>> I'd more than likely lose the ability to bear weight on that leg, since it
>> would no longer be connected to my body. I'm not ambulatory now, but I'm
>> nervous about taking away options for the future - not just in terms of
>> walking, but for daily living and independence. He also prescribed 750
>mg
>> of Relafin. That's expensive and a huge pill, but it's done nothing to
>ease
>> the pain, even when taken with Motrin. I need to do something to end this
>> pain. I'm not sleeping well with it, which makes it impossible to
>function
>> like I need to.
>>
>> Okay, end of rambling narrative, here's my question: Has anyone been in
>> this situation? What's worked to get rid of the pain? Has anyone had
>this
>> surgery or others that worked? What were the "side effects"? Would you
>> recommend them? Thanks so much!
>>
>> ~Joy~
>> [log in to unmask]
>> http://www.geocities.com/joy0823
>> "Forget regrets, or life is yours to miss." - Mimi in RENT
>>
>> ----- Original Message -----
>> From: "Deborah" <[log in to unmask]>
>> Sent: Thursday, May 04, 2000 12:22 AM
>> Subject: Re: Just Checking
>>
>>
>> > What hip problems ? Duhhh, I guess been caught up in my own self pain
>and
>> > other family matters. Please explain to me what you have been going
>> > through
>>
>
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