Tammi,
if you're in calif. you can apply to become a client of the regional center, which will help with all the things for your daughter, including respite. i feel that my dad always had sadness about my cp. but I was a joy to him too, and we had a very close relationship.
http://www.dds.ca.gov/RC/RCList.cfm
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Tamar Mag Raine
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----- Original Message ----
From: Kendall D. Corbett <[log in to unmask]>
To: [log in to unmask]
Sent: Tuesday, November 20, 2007 2:45:18 PM
Subject: Re: Into
Tammi,
Welcome to the list! We'll try to help in any way that we can. Many of us
(if not most) are adults who have CP, but we can offer some advice. I don't
know where you live, but your state should have a parent training and
information center that can help you.
Herre's a link to PTIC's that also has a lot of other helpful info on it:
http://www.yellowpagesforkids.com/help/ptis.htm
Since your daughter is two, she's not ready for traditional schooling yet,
but your state department of education should have info on early
intervention services. It sounds like you might already be using these
services for therapy. This site will help you find info in your state on
educational services for people with disabilities:
http://www.disabilityinfo.gov/digov-public/public/FindSL.do?categoryId=61
Have you applied for SSI for your daughter yet? That can help ease the
financial burdens, especially if you have limited access to health
insurance. If you haven't applied yet, check with social security at
http://www.ssa.gov/disability/ The following is a link to a social security
booklet for parents and caregivers of children with disabilities:
http://www.ssa.gov/pubs/10026.html
Your State Children's Health Insurance Program (S-CHIP) may be helpful as
well.
Check with the Developmental Disabilities Planning Council in your state
about respite and other services too! Here's a directory of the councils in
the states that was current as of 4/07
http://www.nacdd.org/pages/ExecChair.doc
www.Disabilityinfo.gov <http://www.disabilityinfo.gov/> has a bunch of info
that can be helpful also. If I can help, let me know!
On Nov 20, 2007 12:39 PM, Tammi Hart <[log in to unmask]> wrote:
> Hi,
> My name is Tammi and I have a two year daughter with CP. It's been almost
> two years since we were told that she had CP and we have (Husband and I)
> have been moving every since. She goes to thearpy four times a week, not
> to mention what we have to do at home. Our daughter is totally dependent.
> It takes her from an hour to an hour and a half to eat (any advice on how
> to
> speed up feeding). I've noticed lately that I haven't really had time to
> take in
> are way of life. I've been in reactive mold since learning of her
> disorder. I've
> internalize my anger, pain, frustration, and fear and know it is starting
> to hunt
> me. I am stressed, my hair is falling out, and I'm exhausted. I'm seeing
> a
> thearpist and working on the said issues, however, I've noticed how deep
> my
> pain is. Being a parent of a special needs child is overwhelming and very
> challenging. It seems like I'm always fighting the government and
> healthcare
> insurance for what is rightful mine/hers.
>
> Lately, I've been so exhausted and feeling like I am headed for a
> breakdown.
> Any advice on how to cope and regain my strength? I need to accept and
> move on and I'm not doing that in a timly manner.
>
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>
--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.
-George Bernard Shaw 1856-1950
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