Kendall,
What caused the stroke? This is very interesting exactly what I
joined to fine out. We still help Case dress because it is so
difficult for him and why should he spend so much time at it. OTOH it
does stretch when he has to manipulate his socks and what not. I have
been afraid to bring this up with his parents but I am wondering if
his heart needs to be checked as I am concerned about how strong it is.
The therapists want him back in DAFO's which he has not worn since
his operation. The person who does Anat Baniel thinks the DAFO's are
not good because they stop his sensory perception on his feet.
At 05:38 AM 7/31/2008, you wrote:
>Kat,
>
>I haven't used a "chair cycle" of the type you describe, but I do have a
>recumbent stationary bike that works pretty well. As happened with Mary
>Katherine (do you mind if I call you MK?), I also had a stroke at 16 on top
>of my CP, which changed my capabilities, but as we age, Janet and I are
>seeing physical changes that our parents and aunts and uncles didn't see
>until their 60's. I'm really interested in working with NIDRR to establish
>a RERC on aging and disability issues. WIND (The UCEDD I work for) has a
>really strong tie with Wyoming's Geriatric Education Center and UW's School
>of Engineering, so we might be the ideal place to get one started.
>Re-assessing our capabilities as we age is very important. About a year and
>a half ago, Janet decided that there were tasks that she (we) needed AB help
>with, and so got qualified for help with dressing and light housekeeping.
>It's been a Godsend for both of us. My ego is almost to the point that I'll
>be willing to accept help with dressing myself, as I'm having mornings when
>I'm afraid I'm going to wind up on the floor as I put on shoes and socks.
>
>On Thu, Jul 31, 2008 at 3:00 AM, Kathy <[log in to unmask]> wrote:
>
> > I'm 55 and my capabilities are still changing, too. It's not just CP but
> > also aging and a willingness to keep assessing what you can do and pushing
> > yourself just a bit more. Most of my friends are giong through the same
> > thing and they're all AB.
> >
> > In fact, I've started taking advantage of fitness programs at work to start
> > chair yoga and upper-body strength exercising. I also plan to buy a chair
> > cycle so I can exercise my legs - has anyone used one of
> these? You can put
> > them on a table and also cycle with your hands.
> >
> > Kat
> >
> >
> > Mary Powers wrote:
> >
> >> Hello,
> >>
> >> I can walk but - I tend to have 1 of 2 reactions. either denial that I
> >> have impairments or a pitying 'so that's your problem' attitude.
> >>
> >> that said, some people have responded positively when I tell them that
> >> there is something neurologically wrong.
> >>
> >> I have CP but I also had issues with a stroke when I was 16, and poor
> >> vision, an odd type headache that did not go away, and poor coordination,
> >> based on that. I am currently recovering from that based on better visual
> >> and motor therapy, which is based on sensory integration.
> >>
> >> however that said, I was diagnosed with ataxia before I had the stroke and
> >> I'm in the odd position of not knowing what my capabilities are,
> really. I'm
> >> almost 40 and stil figuring that out.
> >>
> >> take care,
> >>
> >> Mary Katherine
> >>
> >>
> >> **************************************
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>
>
>--
>
>
>Kendall
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all progress
>depends on the unreasonable man.
>
>-George Bernard Shaw 1856-1950
>
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