----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, November 13, 2001 8:01 PM
Subject: Bobby, university, Zanaflex, etc.


> Hi Bobby,
>
> I am a 3rd year honours English student at Carleton University in Ottawa,
> Ontario. Its a very accessible school-- We have underground tunnels to all
> university buildings so we don't have to go out in snow or rain, or look
for
> curb cuts. I live 8 hours away from home, and we have an attendant
services
> program here where other students are trained to help us with the
activities
> of daily living, though I do most things myself-- can walk short distances
> around my room but use a power wheelchair for longer distances. I continue
> to struggle with chronic pain from spasticity, and have tried Ativan,
> Baclofen, Clonazepam, Oxazepam, and now the Zanaflex, which has terrible
> side effects for me. It really affects my ability to do schoolwork, and I
am
> sometimes jealous of my suitemate, who can do very little for herself, but
> has athetoid CP and is not in pain. I have had a selective dorsal
rhizotomy
> in May, 2000, but still have major problems with spasticity, so my
> physiatrist wants me to look into intrathecal baclofen. We'll see what
> happens. I just know I can't take Zanaflex, and have called the
neurologist
> regarding how to wean off of it, but haven't gotten a response yet.
>
> Jenn
> ----- Original Message -----
> From: "Bobby G. Greer, Ph. D." <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, November 13, 2001 8:24 PM
> Subject: Re: Problems with Zanaflex
>
>
> > In a message dated 11/13/01 4:34:35 PM, [log in to unmask] writes:
> > Which University, Jenn
> >
> > Bobby
> > >I have spastic diplegic cerebral palsy, and am 23 years old. I go to
> > >university in Canada.
> > >
> > >Jenn
> >Way to go Jenn,I'm a yank with CP,and you sound neat.