Hi Jessica,
PA offers better services! CP children are covered with Access medical  
insurance usually within a month of applying. In York, services were decent for 
 speech, PT, OT in early intervention until child turns three then services 
are  limited! For long term care, there is a home called Margaret Maul 
(sp?) where Cp  children can live once they reach adulthood upon acceptance. My 
friend has her  son there; he started living there in his early 20's, I 
believe. He is  completely dependent for care and it was getting difficult for 
parents with  constant care. You may need to consider moving where therapy is 
available, if  economics is an issue. We did pay for PT out of pocket after 
age 3 to receive  good therapy because what we were offered for free was 
pitiful! But we did  continue speech and Ot for while. Once our son was school 
age though we even  paid for speech out of pocket to receive best services 
possible. 
 
 
In a message dated 3/11/2010 3:00:42 P.M. Eastern Standard Time,  
[log in to unmask] writes:

Hello  All, =0A=0A=A0I am not sure how I started to get your email but I am 
 =
looking for some advice and help. I have a 4months old baby boy who has  
bee=
n diagnosed with Spastic Quadriplegia CP. He is developmentally  
delayed,vis=
ion impaired, now is having seizures and they are telling me  his life span 
=
is between 15 and 20yrs old. His injury is very severe and  everyone is 
worr=
ied! Here in Michigan the waiting lists are=A0very long  to get any help. 
Th=
e therapy we do receive I do not feel like is helping  him. They will not 
do=
anything with him=A0since he can not hold his head  up. I am looking for an=
y advice or any where in the US that can possibly  help us. I want to help 
m=
y son in every and any way. =0A=0AThank  you,=0ADistraught 
mother-Jessica=0A=
=A0~ ~ Jes ~  ~=0A=0A=0A=0A=0A=0A________________________________=0AFrom:  
Me

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