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Subject:
From:
Chester M Worwa <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 9 Mar 1999 08:16:41 -0500
Content-Type:
TEXT/PLAIN
Parts/Attachments:
TEXT/PLAIN (148 lines)
I have tried asking for that, but people like my parents say that I am a
big boy and can take myself.  However, I would prefer something,
even though the bathroom is right accross from my bedroom.

On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:

> oh, a suggestion. i do not know if it is feasible for you, but, would a
> bedside container help until morning?
>
> > -----Original Message-----
> > From: Chester M Worwa [SMTP:[log in to unmask]]
> > Sent: Tuesday, March 09, 1999 7:07 AM
> > To:   [log in to unmask]
> > Subject:      Re: [      Re: Quiet list]
> >
> > I thought it ment something to do with going to the bathroom, because
> > after 3 hours for me and I have to go and with braces on at night it is
> > not fun.
> >
> >
> > On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
> >
> > > actually, rigimortis (spelling) is what happens when people dies and
> > gets
> > > stiff. that's where the term of calling a corpse a stiff came from. i
> > was
> > > playing with the word to indicate how stiff and sore i get after just a
> > > little while in bed.
> > >
> > > > -----Original Message-----
> > > > From: Michelle Montminy [SMTP:[log in to unmask]]
> > > > Sent: Monday, March 08, 1999 3:45 PM
> > > > To:   [log in to unmask]
> > > > Subject:      Re: [      Re: Quiet list]
> > > >
> > > > what's rigimortus?
> > > > -----Original Message-----
> > > > From: Barber, Kenneth L. <[log in to unmask]>
> > > > To: [log in to unmask] <[log in to unmask]>
> > > > Date: Wednesday, March 03, 1999 10:54 AM
> > > > Subject: Re: [ Re: Quiet list]
> > > >
> > > >
> > > > >i usually can't stay in bed much longer than 3-4 before rigamortus
> > sets
> > > > up.
> > > > >
> > > > >> -----Original Message-----
> > > > >> From: Jan Nottmeier [SMTP:[log in to unmask]]
> > > > >> Sent: Tuesday, March 02, 1999 3:31 PM
> > > > >> To:   [log in to unmask]
> > > > >> Subject:      Re: [      Re: Quiet list]
> > > > >>
> > > > >> Yes, I did but I could only stand it for about 3-4 hours max.
> > > > >>
> > > > >>
> > > > >> Chester M Worwa wrote:
> > > > >>
> > > > >> > Did you ever try wearing the braces at night?
> > > > >> >
> > > > >> > On Mon, 1 Mar 1999, Jan Nottmeier wrote:
> > > > >> >
> > > > >> > > Hi Linda,
> > > > >> > >
> > > > >> > > Saw your post and I thought I should respond.  I had my tendons
> > > > >> > > lengthened behind my knee about ten years ago.  I had my
> > tendons
> > > > >> > > lengthened in Germany because the health care insurance covered
> > it
> > > > >> > over
> > > > >> > > there at that time But that is another story.  Anyway before I
> > left
> > > > >> > for
> > > > >> > > Europe my doctor in the United States told me to expect to be
> > > > >> > > hospitalized 4-5 days, had I elected to have the operation in
> > the
> > > > >> > US.
> > > > >> > >
> > > > >> > > Right after my surgery I had major cramps for about ten days
> > while
> > > > I
> > > > >> > was
> > > > >> > > in a hospital in Germany .As for recovery time, my legs were in
> > a
> > > > >> > cast
> > > > >> > > for about 6 weeks, followed by 2 months of exercises to get the
> > > > >> > strength
> > > > >> > > back into my legs.  After spending 6 weeks in a cast I was
> > unable
> > > > to
> > > > >> >
> > > > >> > > lift my legs out of the cast after it was cut open.
> > > > >> > >
> > > > >> > > Following the surgery I could really tell a difference I was
> > able
> > > > to
> > > > >> >
> > > > >> > > strengthen my legs out and could stand up tall.  After about
> > seven
> > > > >> > > months however, my legs started to get weaker again.  My doctor
> > at
> > > > >> > the
> > > > >> > > time said that I should start wearing braces again to
> > straighten
> > > > out
> > > > >> > my
> > > > >> > > lags again.  But I had trouble sleeping because they really
> > hurt at
> > > > >> > > times.  I should have most likely tried to fight through the
> > > > >> > discomfort
> > > > >> > > but I didn't.  Now my walking is getting worse and worse with
> > time,
> > > > >> > but
> > > > >> > > I don't know if I want to go back to that doctor.
> > > > >> > >
> > > > >> > > I didn't mean to discourage you, but I wanted you to know the
> > > > >> > possible
> > > > >> > > advantages and possible drawbacks both short term and long
> > term.
> > > > >> > But I
> > > > >> > > am not a doctor, I was telling my personal experiences, so the
> > > > >> > surgery
> > > > >> > > may work for you.  If you do decide to have the operation I
> > hope
> > > > >> > > everything will go well for you.  If you have any more
> > questions
> > > > >> > please
> > > > >> > > do not hesitate to ask.
> > > > >> > >
> > > > >> > > Jan
> > > > >> > >
> > > > >> > >
> > > > >> > >
> > > > >> > > Linda Wagner wrote:
> > > > >> > >
> > > > >> > > > Kim,
> > > > >> > > >
> > > > >> > > > How old were you when you had your achilles tendons
> > lengthened?
> > > > >> > What
> > > > >> > > > was your recovery like?
> > > > >> > > >
> > > > >> > > > Linda
> > > > >> > >
> > > > >
> > >
>

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