Well said, Ken. Thank You!
It's really disheartening when your family/friends say, "it CAN'T be THAT
bad." Yet, where is their frame of reference? Either they take my word for
it, or they don't. This has been very difficult for me too, as I'm one who
does not like confrontation, and (unfortunately) am easily talked into
believing the problem is in my "head", not in my spine.
-----Original Message-----
From: Barber, Kenneth L. [mailto:[log in to unmask]]
Sent: Monday, February 25, 2002 10:51 AM
To: [log in to unmask]
Subject: Re: My Mom, my physiatrist in Ottawa
you are right kyle, they understand pain from the prospective of hurting for
a while then getting better. they don't understand pain from the standpoint
of hurting today, tomarrow, the next day and on and on with no end. they do
not know what that does to a persom mentally either.
what drives me crazy is these boobs that say they are going to spend a
weekend in a wheelchair so they will know how it feels to be disabled, or
they will spend a day or two with their eyes covered to understand
blindness, ect, ect. the boobs don't have a clue. part of having a
disability is dealling with the fact that you will still have it after the
week end. these boobs know that after the weekend they are going to turn in
the wheel chair to where ever they rented it, they are going to uncover
their eyes, ect. they are just as clueless after their publicity stunt is
over.
-----Original Message-----
From: Cleveland, Kyle E. [mailto:[log in to unmask]]
Sent: Monday, February 25, 2002 10:41 AM
To: [log in to unmask]
Subject: Re: My Mom, my physiatrist in Ottawa
Betty, it's been my experience that almost nobody who has not experienced
chronic pain can appreciate it. You would not beleive some of the crap I
hear from well-meaning family and friends. I've been called everything from
spiritually bankrupt to a drug-addict. None of the naysayers has ever dealt
with pain lasting more than a week. They can sometimes understand the idea
of palliative care in terminally-ill cancer patients, but that's about the
extent of their understanding. "F" 'em all!
-Kyle (who's just as tired of it as Jenn)
-----Original Message-----
From: Betty B [mailto:[log in to unmask]]
Sent: Saturday, February 23, 2002 1:58 AM
To: [log in to unmask]
Subject: Re: My Mom, my physiatrist in Ottawa
In a message dated 2/22/2002 11:08:24 PM Eastern Standard Time,
[log in to unmask] writes:
> ... but I was so hurt w/ my
> Mom's comments.
>
> Any comments, suggestions, etc.
> Jenn
>
Kyle had some thoughtful and considered comments to make. Did you check out
the website he suggested? www.asappain.com?
Moms have a special way of pushing buttons. This seems to be a universal
condition. I'm sorry about your pain, and the fact that your Mom isn't
understanding about it.
Betty
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