sometimes siblings are the best cheerleaders as is
your son. sometimes it is the opposite. your son
sounds great.
--- Amy Frick <[log in to unmask]> wrote:
> So far we have parties every time she does something
> new!!! I think my
> son (3 and 1/2) enjoys every one of them!!! We are
> trying to stay
> positive, the therapists have been great in telling
> me how I am doing a
> good job as well, as Alexandra. They seem to
> understand what the Moms go
> through as well and the kids and I love them for
> that!! Thanks - Amy
>
>
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]] On Behalf Of
> ken barber
> Sent: Friday, June 25, 2004 3:46 PM
> To: [log in to unmask]
> Subject: Re: FW: [feeding] Re: Gag reflex
>
> amy, take your victories as they come. it will be
> long
> and drug out. do not be tempted to give up.
> --- Amy Frick <[log in to unmask]> wrote:
> > Hi my daughter, Alexandra has feeding issues she
> > just recently got rid
> > of her thrust reflex, however still won't swallow
> > anything but stage 1
> > or 2 baby food. We have been trying a new product
> > from Gerber, they are
> > "puffs" and are like cereal, but dissolve easier.
> > We introduced them to
> > her 2 months ago and now she will keep them in her
> > mouth for a minute
> > before spitting them out. Still no swallowing,
> but
> > she will get there
> > eventually. Hope this helps.
> >
> > Amy - Mom of Alexandra 15 months - Cleft
> lip/palate,
> > Extrapyramidal CP,
> > Optic Nerve Hypoplasia and Hydrocephalous.
> >
> >
> >
> > -----Original Message-----
> > From: Jennifer Hisrich [mailto:[log in to unmask]]
> > Sent: Friday, June 25, 2004 11:24 AM
> > To: [log in to unmask]
> > Subject: RE: [feeding] Re: Gag reflex
> >
> > also try more dissolvable solids, something that
> > melts in your mouth
> >
> > if he is okay with milk the puffy cheetos will
> work
> >
> > Graham crackers are what works best for my
> daughter
> >
> > Jennifer Hisrich, mom to Rebecca 9/18/98, 27
> weeks,
> > 1 lb. 3 oz. Totally
> > g-button fed Missing right cerebellum Glasses
> > Patching right eye
> > Chronic lung disease Allergic to soy, eggs, &
> > mustard Outgrown wheat &
> > peanuts Developmental delays Foot braces
> GEReflux,
> > started HGH 4/1/04
> > Now 44 lb. and 39 inches tall
> >
> >
> >
> >
> > Community email addresses:
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> >
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> >
> >
> >
> >
> >
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