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jd wrote:

> Hi April,
> Welcome to C-Palsy. I have a 6 yr old son who has
> spastic quad CP. He was a 26 weeker (1#14oz), no brain
> bleed but he had a cardio-repiratory arrest when he
> was 20 days old that lasted an 1/2 hour before they
> got an heart beat back. The consquence was that
> basically all the white matter had been destroyed in
> his brain. Alex is in first grade now mainstreamed 1/2
> day with the regular classroom and 1/2 day with the
> special ed classroom. He too has had several surgeries
> from fundo's,gtubes,spinal,orthopedic and spinal.
> C-Palsy is a wonderful group of people who have CP and
> they have been a loopy,laughing and realistic look
> into what the future may hold for Alex. I do know what
> you mean about not knowing or being able to talk with
> other parents of kids with CP. ALex has been in
> special ed since he was 5 months old. In all that
> time, last year was the first time he had another
> child in a wheelchair in his school( the kid was
> several years older though). It's almost like our kids
> with CP are the minority of among the disability
> minority. There are two other list-serves that you may
> be intersted in joing. One is CP Parent, which is for
> parents of kids with CP and you'll find lots of othr
> parets who kids have had the grade IV brain bleeds and
> Preemie-Child, which is a list for parents of school
> age ( min. age of kid must be 4) who have been born
> prematurely. Subscription info is below.
>
> CPPARENT
> Listserv for parents who have a child with Cerebral
> Palsy. Archives.
> Instructions: Send the message, SUBSCRIBE CPPARENT
> Your Name to or join
> online.
> Listowner: Paul Sheridan
> [log in to unmask]
>
> Preemie-Child
> An active support group for parents of children born
> prematurely who are now school age (4 years old or
> older).
> To join: Send an email with this message: SUBSCRIBE
> PREEMIE-CHILD Your Full Name to this address:
> [log in to unmask] When you receive a
> reply, email the information requested to the
> listowner to complete your subscription.
> Listowners: Allison & Rick Martin
> <[log in to unmask]>
> Website:
> http://www.comeunity.com/premature/preemie-child/
>
> Joanne
>
> --- April Ramos <[log in to unmask]> wrote:
> . But I have never talked to anyone with a
> > child that was born as early as Austin with a grade
> > 4 brain bleed and CP. So, I will take all advice
> > that I can get. I am thrilled I have found this
> > site. We do not have support group's that are nearby
> > that my husband and I can attend. So this is
> > wonderful!
> >                                          Thank you,
> >                              April Ramos
> >
> >
> > Download NeoPlanet at http://www.neoplanet.com
>
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