it was about her life and becoming an actress.
several great books by a cper were a shadow on summer, and down all the days by the late christy brown. The same as the one who wrote my left foot, he also wrote several books of poetry,
another book was by christopher nolan, also from ireland, under the eye of the clock.
but, i believe she meant books about how cp ages us and what we can do t slow it down. Myself, i recommend swimmng (water exercises) floating gets me completely relaxed... feldenkrais, it can teach you new/easier ways of moving, some people benefit from yoga, but be sure your teacher has been trained to do yoga witth pwd.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
http://www.zazzle.com/TamarMag*
Tamar Mag Raine
[log in to unmask]
www.cafepress.com/tamarmag
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----- Original Message ----
From: Kathy Pink <[log in to unmask]>
To: [log in to unmask]
Sent: Monday, June 30, 2008 10:47:55 AM
Subject: Re: books on CP, and a doctor question
Bettina And All,
I read Geri Jewell's book but, it was a long time ago, I don't
remember at all what it was about.
Kathy
On 6/29/08, Bettina Brown <[log in to unmask]> wrote:
> Geri Jewell, now 51, wrote an autobiography many, many years ago. I can't remember if she addressed the aging issue then because she was in her 20s-30s when she wrote it. She now has an official website, but I couldn't find info on her book. Her website is:
> http://www.gerijewell.com/index.htm
> You might have to do a search on Amazon.com.
>
> Thanks, Bettina - "Crack a smile, its nature's best addictive medicine. Laughter is like inner jogging".
>
> http://profiles.yahoo.com/techwriter4u2
>
>
>
> ----- Original Message ----
> From: Mary Powers <[log in to unmask]>
> To: [log in to unmask]
> Sent: Sunday, June 29, 2008 7:52:29 PM
> Subject: books on CP, and a doctor question
>
> Hello,
>
> I am interested in books on CP.
>
> I've done some looking and I see plenty of books about children, but not much that acknowledges that we grow up :)
>
> I also see a lot of professional books.? the problem with this is that my type is ataxic, but it's an unusual kind of ataxic.? I was diagnosed as a teenager.? however, as an adult I have had other doctors be skeptical.?
>
> that is b/c I have what looks like normal muscle tone when I am resting and for the first - about two minutes of doing an activity.? and then my muscle strength falls off a cliff.? my muscles are very weak.
>
> I have muscle spasms/tremors, difficulty with a lot of motor activities and etc.? also I feel shaky often.? I get tremors/spasms in my stomach/midsection.? I also have the difficulty with depth perception.? When I was 15, I was told damage to the cerebellum caused this.? I have visual difficulties as well.
>
> I have a very supportive husband and I work part-time.? they are very supportive at work.
>
> the doctors decided that I was basically ataxic, but an unusual variation on it, where I had most of the symptoms but not all of them.? I also have other symptoms like spasticity and etc. at times.
>
>
> the reason I'm saying all this is that I'm almost 40 and am noticing some effects from aging, similar to what I hear other people talking about.? more immobility and etc.
>
> and I would like to do PT and/or OT.
>
>
> so - two questions
>
> 1.? since I have an unusual type of CP, how do I best find a doctor who has an open mind about unusual presentations so I can get good PT/OT recommendations?
>
> I have actually encountered only one skeptical doctor and he was an orthopedist who attributed my problems to being overweight.? I really don't think that's the case b/c of what I have noticed, and what I was told when I was 15.
>
> I've been told that seeing a physiatrist is better than seeing a neurologist.? does that sound like that makes sense?
>
> and
>
> 2) any recommendations for books about CP that are not medical, and are not about children, I would appreciate.? particularly if they are written by someone with CP.
>
>
> thanks
>
>
> Mary Katherine
>
>
>
>
>
>
>
>
>
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--
Kathy Jo Pink
e-Mail Addresses: [log in to unmask], [log in to unmask],
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