Ken,
Perhaps his parents just want him to be responsible. As in making
the decision, buying the items, and taking care of it in the morning. We
always have a choice with our kids no matter how old they are of making and
doing things for them - or letting them do that part and just supporting
their decisions. The 19 year old I inherited wants me to make the all
decisions and do the work and she gets the benefits - with my own child - I
told her long ago - when she had to chose between two things and was having
a hard time and said - You do make the decision Mommy - you're the adult. I
came back but it was her life and her decision. If she didn't learn to make
decision when she was young and the decision was only one toy or another -
how would she ever be able to make decisions when she is older and the
decisions are more serious. I always remember she is child first then has
CP - not CP masquarding as a child!! I have notice with the temper bits and
the startle thing everyone wants to place the responisbilty on the CP - and
leaves out the fact that some of this stuff is just plain human. I have
watched Amber struggle with her inabilities since she was a small baby and
never have I heard her blame anything on it. In fact many a time she has
gotten down on herself for not doing something perfectly like the other kids
and I remind she has done the best she could and not everyone does
everything great at everything - functional body or not. I think we hit my
soapbox - sorry!!
Parenting a special needs kid or young adult is not a picnic - You get
all the regular parenting stuff plus the special needs stuff - plus the fact
everytime you think you have it down pat. The kid hits a new stage or age!!!
We parents being old fogys ( NOT) tend to be one step behind!!! Frankly, if
kids didn't whine we where unfair we would lose our villian status - and
what fun is there in that. LOL!! Besides - we haven't heard his parents
point.
Brightest Blessings
Trisha
-----
From: Barber, Kenneth L. <[log in to unmask]>
>i'm sorry. i don't mean to be critical of people like your parents, but,
>part of being a big boy is making accomodations to take care of problems.
it
>is not you that needs to grow up.
>please don't flame me for this statement, it is not given as a statement to
>inflame anyone. it just that if anyone should be willing to make
>accomodations, it should be family who would care. imho
>
>> -----Original Message-----
>> From: Chester M Worwa [SMTP:[log in to unmask]]
>> Sent: Tuesday, March 09, 1999 8:17 AM
>> To: [log in to unmask]
>> Subject: Re: [ Re: Quiet list]
>>
>> I have tried asking for that, but people like my parents say that I am a
>> big boy and can take myself. However, I would prefer something,
>> even though the bathroom is right accross from my bedroom.
>>
>> On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
>>
>> > oh, a suggestion. i do not know if it is feasible for you, but, would a
>> > bedside container help until morning?
>> >
>> > > -----Original Message-----
>> > > From: Chester M Worwa [SMTP:[log in to unmask]]
>> > > Sent: Tuesday, March 09, 1999 7:07 AM
>> > > To: [log in to unmask]
>> > > Subject: Re: [ Re: Quiet list]
>> > >
>> > > I thought it ment something to do with going to the bathroom, because
>> > > after 3 hours for me and I have to go and with braces on at night it
>> is
>> > > not fun.
>> > >
>> > >
>> > > On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
>> > >
>> > > > actually, rigimortis (spelling) is what happens when people dies
and
>> > > gets
>> > > > stiff. that's where the term of calling a corpse a stiff came from.
>> i
>> > > was
>> > > > playing with the word to indicate how stiff and sore i get after
>> just a
>> > > > little while in bed.
>> > > >
>> > > > > -----Original Message-----
>> > > > > From: Michelle Montminy [SMTP:[log in to unmask]]
>> > > > > Sent: Monday, March 08, 1999 3:45 PM
>> > > > > To: [log in to unmask]
>> > > > > Subject: Re: [ Re: Quiet list]
>> > > > >
>> > > > > what's rigimortus?
>> > > > > -----Original Message-----
>> > > > > From: Barber, Kenneth L. <[log in to unmask]>
>> > > > > To: [log in to unmask] <[log in to unmask]>
>> > > > > Date: Wednesday, March 03, 1999 10:54 AM
>> > > > > Subject: Re: [ Re: Quiet list]
>> > > > >
>> > > > >
>> > > > > >i usually can't stay in bed much longer than 3-4 before
>> rigamortus
>> > > sets
>> > > > > up.
>> > > > > >
>> > > > > >> -----Original Message-----
>> > > > > >> From: Jan Nottmeier [SMTP:[log in to unmask]]
>> > > > > >> Sent: Tuesday, March 02, 1999 3:31 PM
>> > > > > >> To: [log in to unmask]
>> > > > > >> Subject: Re: [ Re: Quiet list]
>> > > > > >>
>> > > > > >> Yes, I did but I could only stand it for about 3-4 hours max.
>> > > > > >>
>> > > > > >>
>> > > > > >> Chester M Worwa wrote:
>> > > > > >>
>> > > > > >> > Did you ever try wearing the braces at night?
>> > > > > >> >
>> > > > > >> > On Mon, 1 Mar 1999, Jan Nottmeier wrote:
>> > > > > >> >
>> > > > > >> > > Hi Linda,
>> > > > > >> > >
>> > > > > >> > > Saw your post and I thought I should respond. I had my
>> tendons
>> > > > > >> > > lengthened behind my knee about ten years ago. I had my
>> > > tendons
>> > > > > >> > > lengthened in Germany because the health care insurance
>> covered
>> > > it
>> > > > > >> > over
>> > > > > >> > > there at that time But that is another story. Anyway
>> before I
>> > > left
>> > > > > >> > for
>> > > > > >> > > Europe my doctor in the United States told me to expect to
>> be
>> > > > > >> > > hospitalized 4-5 days, had I elected to have the operation
>> in
>> > > the
>> > > > > >> > US.
>> > > > > >> > >
>> > > > > >> > > Right after my surgery I had major cramps for about ten
>> days
>> > > while
>> > > > > I
>> > > > > >> > was
>> > > > > >> > > in a hospital in Germany .As for recovery time, my legs
>> were in
>> > > a
>> > > > > >> > cast
>> > > > > >> > > for about 6 weeks, followed by 2 months of exercises to
get
>> the
>> > > > > >> > strength
>> > > > > >> > > back into my legs. After spending 6 weeks in a cast I was
>> > > unable
>> > > > > to
>> > > > > >> >
>> > > > > >> > > lift my legs out of the cast after it was cut open.
>> > > > > >> > >
>> > > > > >> > > Following the surgery I could really tell a difference I
>> was
>> > > able
>> > > > > to
>> > > > > >> >
>> > > > > >> > > strengthen my legs out and could stand up tall. After
>> about
>> > > seven
>> > > > > >> > > months however, my legs started to get weaker again. My
>> doctor
>> > > at
>> > > > > >> > the
>> > > > > >> > > time said that I should start wearing braces again to
>> > > straighten
>> > > > > out
>> > > > > >> > my
>> > > > > >> > > lags again. But I had trouble sleeping because they
really
>> > > hurt at
>> > > > > >> > > times. I should have most likely tried to fight through
>> the
>> > > > > >> > discomfort
>> > > > > >> > > but I didn't. Now my walking is getting worse and worse
>> with
>> > > time,
>> > > > > >> > but
>> > > > > >> > > I don't know if I want to go back to that doctor.
>> > > > > >> > >
>> > > > > >> > > I didn't mean to discourage you, but I wanted you to know
>> the
>> > > > > >> > possible
>> > > > > >> > > advantages and possible drawbacks both short term and long
>> > > term.
>> > > > > >> > But I
>> > > > > >> > > am not a doctor, I was telling my personal experiences, so
>> the
>> > > > > >> > surgery
>> > > > > >> > > may work for you. If you do decide to have the operation
I
>> > > hope
>> > > > > >> > > everything will go well for you. If you have any more
>> > > questions
>> > > > > >> > please
>> > > > > >> > > do not hesitate to ask.
>> > > > > >> > >
>> > > > > >> > > Jan
>> > > > > >> > >
>> > > > > >> > >
>> > > > > >> > >
>> > > > > >> > > Linda Wagner wrote:
>> > > > > >> > >
>> > > > > >> > > > Kim,
>> > > > > >> > > >
>> > > > > >> > > > How old were you when you had your achilles tendons
>> > > lengthened?
>> > > > > >> > What
>> > > > > >> > > > was your recovery like?
>> > > > > >> > > >
>> > > > > >> > > > Linda
>> > > > > >> > >
>> > > > > >
>> > > >
>> >
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