I have not been in this situation, since I am not with CP. But I do have
possible fibromyalgia, and boy the pain can get intense especially in the
hips and lower back. I have ended up taking Vioxx during the day and a very
strong medication at night, can't remember the name of it, but it keeps me
groggy most of the time.
My suggestion to you is get a second and third opinion, and do what your
heart is telling you. They have been wanting to inject my neck with
anesthesia since my car accident last May, but I still say no and live with
the pain, It is just to scary things doctors want to do these days.
Deborah mom of 4
----- Original Message -----
From: - Joy - <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, May 04, 2000 2:03 PM
Subject: Re: Just Checking
> Here's a repeat of my original post, for those of you that asked. For
those
> of you that didn't, sorry to make you read it again...
>
> I've been experiencing really bad pain in my right hip and right lower
back
> lately. Since I was never weight-bearing, both of my hips were
dislocated.
> When I was 3, I had surgery to put them back in their sockets. The left
one
> stayed in, but the right one came back out. Since I was born, I've been
> going to the same orthopedist, who had a very wait and see approach to
> treatment. He said that as long as it didn't hurt, we didn't need to do
> anything.
>
> About two months ago, I started to have excruciating pain in very small
> spots, on my hip and back, the dislocated side. My old orthopedist had
> retired, so we went to see Dr. Paul Sponseller, the head of orthopedics at
> Johns Hopkins. He took some x-rays, and gave me a few surgical options.
> First, they could remove the pin that's no longer doing anything. That's
a
> quick in-out surgery, but he doesn't think it'll fix the problem.
>
> Second, they could cut away the part of the hip that's extending above the
> pelvis in its dislocated position. This would probably stop the pain, but
> I'd more than likely lose the ability to bear weight on that leg, since it
> would no longer be connected to my body. I'm not ambulatory now, but I'm
> nervous about taking away options for the future - not just in terms of
> walking, but for daily living and independence. He also prescribed 750
mg
> of Relafin. That's expensive and a huge pill, but it's done nothing to
ease
> the pain, even when taken with Motrin. I need to do something to end this
> pain. I'm not sleeping well with it, which makes it impossible to
function
> like I need to.
>
> Okay, end of rambling narrative, here's my question: Has anyone been in
> this situation? What's worked to get rid of the pain? Has anyone had
this
> surgery or others that worked? What were the "side effects"? Would you
> recommend them? Thanks so much!
>
> ~Joy~
> [log in to unmask]
> http://www.geocities.com/joy0823
> "Forget regrets, or life is yours to miss." - Mimi in RENT
>
> ----- Original Message -----
> From: "Deborah" <[log in to unmask]>
> Sent: Thursday, May 04, 2000 12:22 AM
> Subject: Re: Just Checking
>
>
> > What hip problems ? Duhhh, I guess been caught up in my own self pain
and
> > other family matters. Please explain to me what you have been going
> > through
>
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