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Subject:
From:
Kathy Jo Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 2 Aug 2005 08:42:56 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (184 lines)
Kendall Corbet,



How could these people afford 24/7 Care?  Kathy Jo Pink











Kendall David Corbett wrote:

>Kathy Jo,=20
>
>Depending on the person you're working with to draw up a plan, they may
>use either term.  In my work environment, a PCP deals more with how
>things are now, and a PFP deals with how you'd like them to be.
>
>In the agency I worked for when I first got out of college, there were a
>couple of people who had 24/7 care.  In general they were the people
>with the most severe physical and/or cognitive disabilities; usually
>they had a lot of seizures and so needed someone there in case they had
>a seizure.
>
>Kendall Corbett
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all
>progress depends on the unreasonable man.
>
>-George Bernard Shaw 1856-1950
>
>
>-----Original Message-----
>From: Kathy Pink [mailto:[log in to unmask]]=20
>Sent: Monday, August 01, 2005 5:02 AM
>To: [log in to unmask]
>Subject: FW: [Fwd: Re: I'm Back]
>
>Is a PFP the same as Person-Centered Planning?Is there such a thing as
>one
>to one twenty-four hour round-the-clock care?  I know it would be
>expensive
>.
>
>
>
>Kathy Pink
>
>
>
>
>
>
>
>
>
>
>
>
>
>>From: Kathy Jo Pink <[log in to unmask]>
>>To: [log in to unmask]
>>Subject: [Fwd: Re: I'm Back]
>>Date: Sun, 31 Jul 2005 08:15:16 -0500
>>
>>
>>
>>-------- Original Message --------
>>Subject:       Re: I'm Back
>>Date:  Tue, 19 Jul 2005 14:30:33 -0600
>>From:  Kendall David Corbett <[log in to unmask]>
>>Reply-To:      St. John's University Cerebral Palsy List
>><[log in to unmask]>
>>To:    [log in to unmask]
>>
>>
>>
>>Kathy Jo said:
>>
>>
>>
>>>I don't have a plan to make it happen?  Any ideas, anyone?
>>>
>>>
>>Get in touch with Linda Rowley at the Waisman Center, and ask her for
>>info on personal futures planning, and someone close to Lancaster that
>>can help you put a PFP (personal future plan) together.  I could refer
>>you to several people in Wyoming, but since you're in Wisconsin, that
>>won't work.  Also, ask Linda about a program called "Partners in
>>Policymaking."  I think something like that would be immensely helpful
>>to you!
>>
>>Here are links to:
>>
>>1. The Waisman Center, and to Linda Rowley
>>
>>Waisman Center on Human Development=3D20
>>University of Wisconsin-Madison=3D20
>>1500 Highland Ave=3D20
>>Madison, WI 53705-2280=3D20
>>Main Phone:  608-263-1656=3D20
>>Main Fax:  608-263-0529=3D20
>>Website:  http://www.waisman.wisc.edu/
>>
>>
>>Family Village Internet Project
>>Linda Rowley, LPN, BS
>>608-263-5973
>>[log in to unmask]
>>http://www.familyvillage.wisc.edu/index.htmlx
>>
>>
>>Jean Boehnen probably would have answers to your general questions on
>>CP:
>>
>>Cerebral Palsy Clinic
>>Jean Boehnen, RN=3D09
>>608-263-7335=3D09
>>[log in to unmask]
>>
>>
>>2. Personal Futures Planning,=3D20
>>
>>http://www.iidc.indiana.edu/cedir/pfplanbib.html
>>
>>The above link is a bibliography on person centered planning, which is
>>another name for personal futures planning.=3D20
>>
>>3. Partners in Policymaking, which got started in Minnesota.
>>
>>http://www.partnersinpolicymaking.com/
>>
>>Kendall Corbett
>>
>>An unreasonable man (but my wife says that's redundant!)
>>
>>The reasonable man adapts himself to the world; the unreasonable one
>>persists in trying to adapt the world to himself. Therefore, all
>>progress depends on the unreasonable man.
>>
>>-George Bernard Shaw 1856-1950
>>
>>
>>-----Original Message-----
>>From: Kathy Jo Pink [mailto:[log in to unmask]]=3D20
>>Sent: Tuesday, July 19, 2005 11:20 AM
>>To: [log in to unmask]
>>Subject: Re: I'm Back
>>
>>
>>I like living with my parents.  I don't know what I want.  I guess
>>ideally , I want to live in my own place (apartment?).  If that does
>>
>>
>not
>
>
>>work I will go to an adult family home, a group home, or a nuring home
>>(a nursing home would probably be my last choice.)  I don't have a plan
>>to make it happen?  Any ideas, anyone?
>>
>>
>>
>>
>>
>>
>
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