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Subject:
From:
Chester M Worwa <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 9 Mar 1999 14:07:39 -0500
Content-Type:
TEXT/PLAIN
Parts/Attachments:
TEXT/PLAIN (187 lines)
I do understand, it is an ongoing battle, maybe with me being in college I
could find something to use as a temporary thing.


On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:

> i'm sorry. i don't mean to be critical of people like your parents, but,
> part of being a big boy is making accomodations to take care of problems. it
> is not you that needs to grow up.
> please don't flame me for this statement, it is not given as a statement to
> inflame anyone. it just that if anyone should be willing to make
> accomodations, it should be family who would care. imho
>
> > -----Original Message-----
> > From: Chester M Worwa [SMTP:[log in to unmask]]
> > Sent: Tuesday, March 09, 1999 8:17 AM
> > To:   [log in to unmask]
> > Subject:      Re: [      Re: Quiet list]
> >
> > I have tried asking for that, but people like my parents say that I am a
> > big boy and can take myself.  However, I would prefer something,
> > even though the bathroom is right accross from my bedroom.
> >
> > On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
> >
> > > oh, a suggestion. i do not know if it is feasible for you, but, would a
> > > bedside container help until morning?
> > >
> > > > -----Original Message-----
> > > > From: Chester M Worwa [SMTP:[log in to unmask]]
> > > > Sent: Tuesday, March 09, 1999 7:07 AM
> > > > To:   [log in to unmask]
> > > > Subject:      Re: [      Re: Quiet list]
> > > >
> > > > I thought it ment something to do with going to the bathroom, because
> > > > after 3 hours for me and I have to go and with braces on at night it
> > is
> > > > not fun.
> > > >
> > > >
> > > > On Tue, 9 Mar 1999, Barber, Kenneth L. wrote:
> > > >
> > > > > actually, rigimortis (spelling) is what happens when people dies and
> > > > gets
> > > > > stiff. that's where the term of calling a corpse a stiff came from.
> > i
> > > > was
> > > > > playing with the word to indicate how stiff and sore i get after
> > just a
> > > > > little while in bed.
> > > > >
> > > > > > -----Original Message-----
> > > > > > From: Michelle Montminy [SMTP:[log in to unmask]]
> > > > > > Sent: Monday, March 08, 1999 3:45 PM
> > > > > > To:   [log in to unmask]
> > > > > > Subject:      Re: [      Re: Quiet list]
> > > > > >
> > > > > > what's rigimortus?
> > > > > > -----Original Message-----
> > > > > > From: Barber, Kenneth L. <[log in to unmask]>
> > > > > > To: [log in to unmask] <[log in to unmask]>
> > > > > > Date: Wednesday, March 03, 1999 10:54 AM
> > > > > > Subject: Re: [ Re: Quiet list]
> > > > > >
> > > > > >
> > > > > > >i usually can't stay in bed much longer than 3-4 before
> > rigamortus
> > > > sets
> > > > > > up.
> > > > > > >
> > > > > > >> -----Original Message-----
> > > > > > >> From: Jan Nottmeier [SMTP:[log in to unmask]]
> > > > > > >> Sent: Tuesday, March 02, 1999 3:31 PM
> > > > > > >> To:   [log in to unmask]
> > > > > > >> Subject:      Re: [      Re: Quiet list]
> > > > > > >>
> > > > > > >> Yes, I did but I could only stand it for about 3-4 hours max.
> > > > > > >>
> > > > > > >>
> > > > > > >> Chester M Worwa wrote:
> > > > > > >>
> > > > > > >> > Did you ever try wearing the braces at night?
> > > > > > >> >
> > > > > > >> > On Mon, 1 Mar 1999, Jan Nottmeier wrote:
> > > > > > >> >
> > > > > > >> > > Hi Linda,
> > > > > > >> > >
> > > > > > >> > > Saw your post and I thought I should respond.  I had my
> > tendons
> > > > > > >> > > lengthened behind my knee about ten years ago.  I had my
> > > > tendons
> > > > > > >> > > lengthened in Germany because the health care insurance
> > covered
> > > > it
> > > > > > >> > over
> > > > > > >> > > there at that time But that is another story.  Anyway
> > before I
> > > > left
> > > > > > >> > for
> > > > > > >> > > Europe my doctor in the United States told me to expect to
> > be
> > > > > > >> > > hospitalized 4-5 days, had I elected to have the operation
> > in
> > > > the
> > > > > > >> > US.
> > > > > > >> > >
> > > > > > >> > > Right after my surgery I had major cramps for about ten
> > days
> > > > while
> > > > > > I
> > > > > > >> > was
> > > > > > >> > > in a hospital in Germany .As for recovery time, my legs
> > were in
> > > > a
> > > > > > >> > cast
> > > > > > >> > > for about 6 weeks, followed by 2 months of exercises to get
> > the
> > > > > > >> > strength
> > > > > > >> > > back into my legs.  After spending 6 weeks in a cast I was
> > > > unable
> > > > > > to
> > > > > > >> >
> > > > > > >> > > lift my legs out of the cast after it was cut open.
> > > > > > >> > >
> > > > > > >> > > Following the surgery I could really tell a difference I
> > was
> > > > able
> > > > > > to
> > > > > > >> >
> > > > > > >> > > strengthen my legs out and could stand up tall.  After
> > about
> > > > seven
> > > > > > >> > > months however, my legs started to get weaker again.  My
> > doctor
> > > > at
> > > > > > >> > the
> > > > > > >> > > time said that I should start wearing braces again to
> > > > straighten
> > > > > > out
> > > > > > >> > my
> > > > > > >> > > lags again.  But I had trouble sleeping because they really
> > > > hurt at
> > > > > > >> > > times.  I should have most likely tried to fight through
> > the
> > > > > > >> > discomfort
> > > > > > >> > > but I didn't.  Now my walking is getting worse and worse
> > with
> > > > time,
> > > > > > >> > but
> > > > > > >> > > I don't know if I want to go back to that doctor.
> > > > > > >> > >
> > > > > > >> > > I didn't mean to discourage you, but I wanted you to know
> > the
> > > > > > >> > possible
> > > > > > >> > > advantages and possible drawbacks both short term and long
> > > > term.
> > > > > > >> > But I
> > > > > > >> > > am not a doctor, I was telling my personal experiences, so
> > the
> > > > > > >> > surgery
> > > > > > >> > > may work for you.  If you do decide to have the operation I
> > > > hope
> > > > > > >> > > everything will go well for you.  If you have any more
> > > > questions
> > > > > > >> > please
> > > > > > >> > > do not hesitate to ask.
> > > > > > >> > >
> > > > > > >> > > Jan
> > > > > > >> > >
> > > > > > >> > >
> > > > > > >> > >
> > > > > > >> > > Linda Wagner wrote:
> > > > > > >> > >
> > > > > > >> > > > Kim,
> > > > > > >> > > >
> > > > > > >> > > > How old were you when you had your achilles tendons
> > > > lengthened?
> > > > > > >> > What
> > > > > > >> > > > was your recovery like?
> > > > > > >> > > >
> > > > > > >> > > > Linda
> > > > > > >> > >
> > > > > > >
> > > > >
> > >
>

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