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Subject:
From:
Trisha Cummings <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 22 May 2000 14:40:56 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (117 lines)
> Hi Ken,
>
>     I talked to all the teachers at the beginning of the year. I go to
> back to school night, and take the time to introduce myself and talk a bit
> about Amber. The PE teacher isn't part of the team of teacher that handle
> the core classes - nor is the Home Ec teacher - except  that's the class
> the PID teacher helps with, so that teacher is kept constantanly aware of
> the needs. However, you think a note from the doctor would be a clue?
>
>     I had a long discussion with the English teacher - who knows Amber is
> bright and is trying to help also. I hadn't gotten good vibes from her
> before - but this last call - thanks to my new kitten ( all of 8 weeks
> old) - who decided to fall in the toilet while we were on the the phone -
> which cracked her up, and she is also a cat owner - broke the ice and gave
> us that common ground from working from.
>
>     One of the factors at play here might something Amber mentioned the
> other night to Ed and myself. She and her friends Danica and Stephen where
> having deep 13 year old discussions in which they covered various and
> sundry topics - one of which was - discussing Amber's father and Amber
> said - She knew Daddy left becasue she was disabled. Oh Ken - I wanted to
> scream in fury - I have tried so hard to keep this from her. But the truth
> is her father couldn't handle it. His father has said so - his temporary
> second wife said so,too. Fortunately she also said - it wasn't her fault -
> it was his problem. Never the less I have some concerns as to how this
> effects her thinking and self imagine as if having CP wasn't enough of
> hurdle to grapple with. I was 42 before I realized my parents couldn't
> love me and would never love me and I needed to let it go, instead of
> thinking someday I would do something and they would magically love me. I
> really - really wanted to spare Amber the pain of knowing someone doesn't
> love you - when its a person as critical as a parent. I suppose I am over
> re-acting, and Amber would say - quit worring Mom!! Any ideas?
>
>                                  Brightest Blessings
>                                     Trisha - who has been a soggy little
> Angel now for weeks
>
> it never ends does it trisha. hang in there. does the teacher (pe) have a
> clue?
>
> -----Original Message-----
> From: Trisha Cummings [mailto:[log in to unmask]]
> Sent: Monday, May 22, 2000 1:43 PM
> To: [log in to unmask]
> Subject: Re: The Before time
>
>
> Hi Anee!!
>
>         Nice to hear from you!!
>
>        I had a nice thing happen the other Friday. Amber is failing 8th
> grade badly!! And I and the teachers have been meeting like crazy!!  We
> had
> her IEP not long ago, and it was kinda discomfublated and I wasn't sure I
> was getting thru. Well, every week they send home a report now, of how
> stuff
> is going, and the head of the team called last friday becasue she had
> forgotten to send home the report so we did it oover the phone!! And
> except
> English - we are doing better!! Anyway - she went on to say - how critical
> it was to make sure the writing difficulty was highly stressed in the IEP
> -
> becasue she was worried next year - at the High School Level Amber might
> slip thru the cracks with having so many seperate teachers. She herself
> had
> observed the difficulty with the writting. She had tried to help her with
> the computer. I felt like after years of IEPs and accommodations - I
> finally
> had someone who actually understood. And low and behold the F - she had
> had
> in that class had transformed to C  for the 4th quarter interim report.
> The
> bad news is - she now failing gym becasue the teacher has it in her head
> she
> can walk the mile in 14 minutes.......... Sigh   I am taking up sword and
> shield and going to do battle on that front this week!!
>
>                                               Brightest Blessings
>                                                   Trisha - The Militant
> Mom!!!
>
>
> > I must say that I have done plenty of figting on both fonts that of the
> > mentaly/severly disabled and that of the physically disabled--of course
> > having cp there's alot of battels that you fight for your self and
> others
> > who
> > are also disabled.  I used to do volonteer work at a center for the
> severe
> > and profound when I lived in Virgina.  I really like working with this
> > population and do it any chance I get.  I seem to have a talant for it.
> > As
> > some of you also know prior to moving to Idaho I worked at the comunity
> > college I attended in Texas mentoring students with MR.  Unfortuntly I
> > haven't found an outlet for my "talanet" yet here in Idaho.  :(
> >
> > Yours,
> > Anee
> > Webmaster of CPIC
> > http://www.geoctities.com/aneecp/CPIC.html
> >
> > In a message dated 5/21/00 4:54:29 PM Mountain Daylight Time,
> > [log in to unmask] writes:
> >
> > << Looking back, most of my energy in "changing the world", has been
> >  on behalf of people with mental handicaps, rather than physical.
> >  A group with even less chance to change the world. I find it so
> >  strange that a lot of physically handicapped people are as biased
> >  against the mentally handicapped as the rest of the population.
> >  (It may be that we with CP have probably all been mistaken for
> >  drooling imbeciles at one time or another, and we are all so
> >  proud of our intellectual abilities, that we can lose sight of
> >  the fact that intelligence is only one ability, there are many
> >  others - perhaps more important).
> >   >>

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