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Subject:
From:
Bobby Greer <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 15 Jul 1999 14:19:22 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (53 lines)
Choking and throwing up has become more regular as I grow older. I have a
spot in the back of my throat which seems sensitive to things like
chocalate, sweets,
and hot spices. When this spot is stimulated I begin to choke. Other times
I eat too fast and the food becomes caught in the esophagus and I have to
walk around to let gravity draw the food down. It's very embarassing. I
have a friend who is  my gastroenterologist and he told me to never mess
with barium x-rays since they would miss too much and I would go through
too much pain and humiliation.
I don't know what to recommend for the other end, e.g., throat. He scopes
my bottom side and gives me IV diazepam(Valium). Go see a good EENT man.

Bobby


>           Hello,
>          You may remember that some weeks ago I asked this list about how
>          is it when you go in for surgery and you have CP.  Well, the
>          response that I got was helpful in preparing me to go for the
>          procedure and I thank the people who responded.
>
>          Now for the news.  Five years I thought that I had a pocket in my
>          throat and it was causing me to choke on my food so that I had to
>          vomit to clear my throat.  Five years ago I went to have a series
>          of x-rays to find out why I was choking.  Upon the revelation
>          that I had a pocket, it was suggested to me to have it removed
>          and I went to see a surgeon.  My wife and I did not like the
>          person who I saw and I did not have the operation done.
>
>          The symptoms were not to bad until this past spring when the
>          choking got to new heights, so I went to another surgeon.
>          This surgeon wanted me to have another series of barium swallows
>          and a scope to see if my pocket increased in size.  He did not
>          see the pocket so he put me under general anesthetic to relax my
>          throat muscles so he could see the pocket.  Guess what, there is
>          NO pocket, The hospital who read my x-rays five years ago, read
>          them wrong.
>
>          My wife and I went to see the surgeon yesterday to see what could
>          be wrong.  He is having me go to have x-rays of me swallowing
>          because he feels that I have a very spastic muscle in my throat.
>          My question to is group is, does anybody have a muscle in the
>          throat that makes it difficult to eat and if so, what do you do.
>
>          My surgeon said that there are a number of activities that they
>          could do including Botox(?Sp) injections. He also said that this
>          spastic muscle in my throat is not related to CP.
>
>          Anyone with answers to my questions, please respond.  I am very
>          much interested in your answers.  Thank you.
>
>            By the way, today is Wendy's and my 10th wedding anniversary.

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