thanks, i'll look at all this. i may be able to clasify myself.

-----Original Message-----
From: Yvonne Craig [mailto:[log in to unmask]]
Sent: Friday, July 05, 2002 12:42 PM
To: [log in to unmask]
Subject: Re: A new aging survey for the list


<<Ken wrote:

well guys i must admit that i am ignorant of how to classify myself. i =
have
some dydtonia and spasms in all my limbs, but much worse on the left sid.
that don't mean that i do not spasm in he right as i have had spasams in =
my
right arm and throw coffee staight up. while my left leg is worse than the
right i have spasmed enough in both ehouth to pull joints out . the arms =
is
worse than the legs with the left arm being worse of all 4 limbs. then i
have speech slur and dystonic neck. hey even my left eyebrow is pulled to =
a
different level than my right.

so how am i classified?>>

Wow, Ken! You sound a lot like Anthony. He doesn't have the dystonia but =
is spastic in all 4 limbs. His arms are more affected than his legs. His =
left arm is most affected. Of his legs his right one is worse. He is =
classified as moderate spastic quadreplegia but that doesn't really fit... =
Typically, in addition to all 4 limbs being affected, quad CP affects the =
trunk and head control - his are quite good compared to how affected his =
limbs are.  Also, quad usually presents with legs more affected than arms. =
Hemiplegia which is one-side usually means the arm is more affected than =
leg on that side. So I think of Anthony more as double hemi. Does that =
make sense? Also may explain why his speech is as good as it is - with the =
degree of spasticity in his arms, if he was typically quad, his mouth/ =
jaw/ head should be much more affected and interfere more with his =
speech.=20

Bobby, you may want to include tri-plegia as a chategory as well.=20

This website has a good overview of "types" of CP:

http://www.ofcp.on.ca/aboutcp.html#Z5

As an alternative to this classification system, you might check out the =
following. It is a new functional assessment which can be applied to all =
forms of CP, regardless of "type." Anthony is most likely a level IV on =
this scale but on the border of level III.

http://www.geocities.com/Heartland/Village/9021/articles/gmfm.html

Also, I found this article on the Ontario Federation for CP website as =
well:

http://www.ofcp.on.ca/aging.html=20

This is very exciting what you guys are trying to do. Good luck with it! I =
look forward to reading the results.

Yvonne