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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 25 May 2000 07:09:41 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (74 lines)
i am sorry yvonne. i'd hope and pray for it to be different, but, i can't
predict it to be different. i do not think it will be.

-----Original Message-----
From: Yvonne Craig [mailto:[log in to unmask]]
Sent: Tuesday, May 23, 2000 9:41 AM
To: [log in to unmask]
Subject: Re: The Before time


Well, I'm listening and you are scaring the hell out of me. I had hoped =
things were changing just a little. I am prepared for the day my son comes =
home from school crying 'cause he was teased. I am prepared for his grief, =
his anger and frustration when it dawns on him that he is different =
physically from his peers. What I'm NOT prepared for is to watch him have =
to learn to accept the unacceptable "little things" as "that's the way it =
is". I HATE that anyone has to live like that.

Yvonne
Mommy to Anthony (spastic quad CP)

>>> [log in to unmask] 05/22/00 09:36AM >>>
I agree Ken. There are so many "little things" we encounter everyday that =
we
shrug off as "that's the way it is". The stares, the smirks, the "gee I =
didn't
know....". Even if we could remember it all, we couldn't tell it because =
no
TAB would take time to listen.

Bobby



>>I don't understand why disabled people I knew in the "before time" =
didn't
>>tell me about some of these things.  Maybe they thought I wouldn't have
>>listened.
>they listen, but just don't hear. just this week end my wife and i were
>talking about college entrance test. she just ask my scores. i told here =
and
>she said "my lord, why did you go into the government?"  i told her about
>graduating in the top 10 % of my class and being offered a job, making
>brooms." went over the other cases of discrimination and the fact there =
was
>no ADA. went over the fact that i should be 2-3 grades higher with the
>quallity of work i did (even in the government). now this is my wife. she
>has heard most of this before and still does not understand completely.
>
>>Mainstream media doesn't tell our stories the way they should be told.  =
I
>
>these people think they can spend the night on the street and know what =
it
>is like to be homeless, but they don't because they know that tomarrow =
night
>they  will be warm and comfortable. they think they can roll around for a
>day in a wheelchair or blindfolded and understand what it is like to be
>disabled, but they do not, because they know that tomarrow they will be
>walking, or seeing. part of disability is knowing that you'll not every =
play
>3rd base the way your brother does, that you'll never be on a highschool
>team, you can't even serve your country in the service. you know that 90 =
%
>of the opposite sex would not even thing about dating you, even those =
that
>are your friends would not ever consider you in a "dating way."
>part of being disabled is knowing that tomarrow will be the same, the =
next
>day, the day after that and on and on you are going to be disabled, then =
you
>get old a find that it gets worse.
>  how can anyone tell our story?

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