Vera,

        I am sorry to be getting back to you so late. It is a shame about
Charlotte's late diagnosis. My parents had the good fortune of meeting a
neurosurgeon named Lewis M. Helfer in a charity clinic in '42. He saw me
until I was 21 yo. He never did any procedures but gave my mother insight
into things
she could do to help me. For example, I had poor speech due to poor breathe
control. He recommended singing lessons to teach me better breathing
control.
It worked well 'til the singing teacher committed suicide(not really, just
kidding!) LOL. Helfer never once billed my parents!
        Helfer was a God send to us. He and my Mom visted back in '97, just
before his death.

Bobby


>Bobby,
>
> Thanks for the warm welcome.  I can't imagine that something they can
>diagnose correctly in 1942 is still such a leap in the 90s - almost 2000!!!!
>I guess it's just a matter of neurologists and someone who cares and someone
>who does'nt.  I think we have hit the motherload in the neurologist we have
>even if it has been a long time in coming.  When her doctor is with us he
>always addresses and explains to Charlotte first and I think this is great.
>
>I look forward to being part of this group.
>
>Vera