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Subject:
From:
Mike Collis <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Fri, 1 Sep 2006 21:14:42 -0400
Content-Type:
text/plain
Parts/Attachments:
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Mary, you might just have a weird case of C.P., because Premature birth,
balance, co-ordination and stiffness problems are symptoms of C.P., and mild
C.P. can sometimes fool doctors.  Each case of C.P. is as individual as the
individual.    

-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Mary Katherine Powers
Sent: Friday, September 01, 2006 8:19 PM
To: [log in to unmask]
Subject: I'm new here - muscle stiffness

Hello,

I hope you don't mind my being on this list.  I'm new.  I do not have 
CP, but I have issues with chronic muscle stiffness that cause pain and 
make movement difficult.  I'm doing physical therapy for it.  I was 
hoping to get some suggestions on dealing with muscle stiffness that 
might help.

what I can do is limited, so the stretches have to be really gentle.  
I've tried doing stretches too hard and had a lot of trouble moving 
after that.  I've been told to take it easy and build up slowly.

I have chronic pain in my legs, back, neck, shoulders, arms, and 
occasionally fingers.  I'm overweight and I've been told that although 
that does not help, it's not the cause of the problem.  I was told I 
was out of shape because people much more overweight than I am have 
more mobility.  I agree with this, but my muscles have always been 
stiff.  It's just the way I am.

I can walk but it is difficult.  I'm hoping the PT will make it easier.

Also, I was a preemie (11 weeks early) and I have the typical balance, 
coordination, etc. problems.  my vision is not great and I have no 
depth perception.  that really is not the problem though, it's the 
muscle stiffness that gets to me.

any suggestions on dealing with muscle stiffness would be appreciated.  
when I tried googling it, all kinds of information on all kinds of 
different conditions, like Parkinson's, came up, none of which I have.

another strange thing, and I was wondering if anyone could comment, is 
that I've had no luck going to "regular" PTs who were recommended by my 
doctors.  they are at places like "sports and spinal" and some other 
group, and they tend to be very cursory, don't understand what I'm 
talking about, and then circle a couple stretches on a piece of paper 
and tell me to do them, and usually I can't do the stretches they want. 
  It's weird.  I went to someone today at a place called Pain and 
Rehabilitation Medicine and I spent $250.00 for an appoinment that 
lasted about an hour.  It was like night and day - he was excellent.  
he does not take insurance and still he has a waiting list about 2 
months long.

Any experiences like that, where the "regular" PT places recommended by 
doctors just don't work?  I find that odd, like they should know a bit 
more about what they are doing.

thanks,

Mary Katherine
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