Yes, to caring professionals like Judy!

And, YES especially, to amazing mothers, like you, dearest Joanne.  :-)

S.

----- Original Message -----
From: "joanne" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Wednesday, April 11, 2001 5:48 AM
Subject: Re: a shot that killed.


> Kudos' to your wife for caring Ken. Hospitals are really scary things
for
> many of our kids who have multiple disabilities. Even large children
> teaching hospitals have to be watched all the time. Alex has had a
very
> rough time medically. The mobility part of his CP has been close to
the last
> issue we had to address with his medical problems. Everytime he has to
see a
> new specialist they have to bring his chart in on trolley cart and
people
> think it's for 6-7 very sick people because it as that many thick
folders. I
> was always amazed the ER staff had little knowledge or access to
gtubes or
> other mechanical assistance needed by many of our more involved kids.
All of
> his hospital stays he was never left alone, I usually, but always
another
> family member would be with him( including sleeping on that dinky
couch
> called a sleepover bed for parents) and caught the medical mistakes.
You
> learn to watch like a hawk and advocate gets added to your list of
> credentials.
> On a positive note it's people who care, like your wife, who have made
> success stories out kids like Alex. He has always been considered
> XSI(severely multiply impaired) by the school system. He has been part
of
> the Special education curriculum since he was 5 months old. This  year
he
> was placed in the EMI ( educable mentally impaired) kindergarten
class. I
> had a teacher conference this week. He has done pretty well in the
class and
> I was hoping next fall he could go to the regular kdg in the morning
and the
> EMI class in the afternoon. They felt it wasn't in his best interest
because
> ( I'm still on cloud 9) they felt he would benefit better from being
in the
> REGULAR 1st GRADE with the  proper support. I spent over 2 hours with
the
> assitive tech person going over all of Alex's physical needs
>  computers,dressing, eating etc) and he gets to try out a bunch of her
toys
> after Easter break. Sometimes there really is light at the end of the
tunnel
> and for our kids it starts with caring people like your wife.
> Joanne
>
> ----- Original Message -----
> From: Barber, Kenneth L. <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, April 10, 2001 1:38 PM
> Subject: a shot that killed.
>
>
> > my wife, judy, works with kids that are profoundly mentally
retarded. many
> > of these kids have cp, were shaken babies, etc. she told me last
knight
> that
> > two of their kids had died over the spring break.