-----Original Message-----
From: [log in to unmask] [mailto:[log in to unmask]]
Sent: Monday, February 02, 1998 7:00 PM
To: CP_Dystonia
Subject: CP_Dystonia Digest #494 - 02/03/98

CP_Dystonia Digest #494 - Tuesday, February 3, 1998

  Re: CP_Dys:Any thoughts?
          by "Vikki A. Stefans" <[log in to unmask]>


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Subject: Re: CP_Dys:Any thoughts?
From: "Vikki A. Stefans" <[log in to unmask]>
Date: Mon, 1 May 2000 22:58:23 -0500 (CDT)

There was a lot of literature produced re "Aging and CP" a few years
bcak
is fairly well accepted now that folks with CP, having put more stress
on
various joints, can have DJD (degenerative "wear and tear" arthritis) at
that age, one to two decades earlier than may be typical of others in
their family.  Cervical (neck) and lower extremities can both be
affected
fairly commonly.  Management may involve spasticity treatment as well as
NSAIDs and pain meds, and planning for both rest and excercise activity;
pool therapy, swimming, etc. can be very helpful as it can for anyone at
any age with similar problems.

Not everybody runs into these problems, and it does not mean that the CP
itself (the brain involvement) is getting any worse.

Vikki Stefans, pediatric physiatrist (rehab doc for kids), e-mail
junkie,
working Mom of Sarah T. and Michael C., and wife of Henry "My Travel
Agent",
Arkansas Children's Hospital/ U of A for Medical Sciences, Little Rock,
aka
[log in to unmask] ...and EVERY mom is a working mom! (OK, dads
too.)



On Sat, 29 Apr 2000, Richard Blythin wrote:

>     I'm just curious what the rest of you think about something or if
> there's any truth to this. Going back a while I read somewhere I think
it
> was on a CP newsgroup, that people with CP when they get in their late
30's
> or early 40's start to have a lot of pain. All of them or most seem to
claim
> that their CP starts getting very painful once you start getting into
your
> late 30's or early 40's.
>
>     Everthing I was told was that my CP would never get any worse. It
could
> only get better if I worked on it. Now my CP is very mild compared to
most,
> I can type using a keyboard without any aids, drive a car fine etc.
But the
> thought that my CP could get very painful later in life doesn't really
sit
> to well with me!. Especially when everyone told my parents at the time
it
> would never get worse. Then again that was back in 1979, and I was one
of
> the few premies who survived at that time especially since I was only
1
> pound 13 oz when I was born. Maybe they know things now they didn't
know 21
> years ago in that CP and get worse in later life.



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End of CP_Dystonia Digest