Jenn,

I'm sorry, but I don't understand what you're writing to the team about.
Your message didn't say.  If you want to know if you should write to the
team about the problems you're having right now, especially as a direct
result of the mangled trial, yes, you need to write them.

You're still in my thoughts and prayers.

Kat

----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, April 21, 2002 1:21 PM
Subject: Really struggling-- help needed


> Hi Everyone,
>
> I am really struggling-- both with completing exams and assignments, and
> with something else. I write to ask for advice.
>
> Here is the question: Should I write to the Movement Disorders team in
> London (made me go through double blind study for intrathecal baclofen,
> saying they wantyed to see if it improved pain, then hit nerves with the
> lumbar puncture. I knew what day I was given the medication because I had
> all the bad side effects. I then learned in a letter to a third party that
I
> was diagnosed with dystonia, am  now struggling with oral meds, exams,
etc.
> While I recoignise the amnou t of drug they would have given would not
have
> helped me (from, reading  many many articles) it does not seem fair and I
am
> still upset over it... Any advice on what to do? Am so downhearted, and
need
> help ASAP FROM A SURGEON. What would you do?
> Thanks.
> Jenn