Anthony,
If your grandfather were able to make the decision _on his own_ to leave the nursing home, he should also be able to help arrange the supports he needs to live in the community. None of us, whether we have a disability, are elderly, or whatever, manages completely on our own.
IMHO, every person who has not been declared incapable of making the decision of where to live should have the right to make that choice, and if supportive services are required to help their decision succeed, those services should be available. That's what the "I" in Independent Living is about, although I sometimes think it should be referred to as Interdependent Living, since I rely on others (the guy who mows my lawn, my auto mechanic....) to do things I can't do myself.
My neighbor across the street ran out of room to store things in his garage, and asked if he could put a couple of things in ours; we said fine, and rather than having him pay any kind of rent, he clears our walks when it snows. That's a natural, because one of the things he didn't have room for was his snowblower. That's what's known as utilizing "natural supports," and I believe in using those as much as possible.
Kendall Corbett
Coordinator of Consumer Activities
Wyoming INstitute for Disabilities - WIND
College of Health Sciences
University of Wyoming
1000 E. University Avenue, Dept. 4298
Laramie, WY 82070
(307) 766-2853
[log in to unmask]
www.wind.uwyo.edu
The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: Anthony Arnold [mailto:[log in to unmask]]
Sent: Thursday, September 21, 2006 11:13 AM
To: [log in to unmask]
Subject: Re: [C-PALSY] Nursing homes
I don't exactly know the ages of the people that they were assisting to get
out of the nursing home, but it sounded like they were 75+, and were put
there by their family members. None of my grandparents are still living,
but let's say that my father and his sisters thought that my grandfather
should be in a home, I would personally hate to have some ILC come in to
tell my grandfather differently and he ended up going home and something
happens.
Thanks,
Anthony
www.anthonyarnold.net
(I blog)
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Kendall David Corbett
Sent: Thursday, September 21, 2006 12:05 PM
To: [log in to unmask]
Subject: Re: Nursing homes
Mike, Mag, Anthony et al,=20
De-institutionalization has become the norm in the lives of people with
cognitive/intellectual and other disabilities, at least in Wyoming and
Colorado or at the very least living in group home settings. The
provider I worked for when I first got out of college (way back in '88)
only had one group home then and that was for people to age 21. After
that people were transitioned into their own apartments or apartments
with a roommate. Since it was a college town, people who needed 24/7
care often had roommates who helped provide care who were students and
part-time employees of the agency.
It's important that resources and community supports are in place before
someone moves into the community, and that a mechanism is available to
help out if people's needs change, but when I worked for an ILC, that's
what we saw our mission to be.
Through a concept called "Money Follows the Person," (MFP) people who
are in nursing homes and have it paid for through Medicaid could
potentially use the funds to pay for community services. Since Medicaid
usually pays between half and two thirds of what private pay does for
nursing home care, that's $2,250.00 to $3,000.00, using the costs for my
grandmother. That's not to far off what my wife and I bring home in a
month, and we do OK.
I get updates on how states can successfully implement MFP, so if any of
you would like them, I can give you the info on how to get them.
Kendall=20
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: Tamar Raine [mailto:[log in to unmask]]=20
Sent: Wednesday, September 20, 2006 10:00 PM
To: [log in to unmask]
Subject: Re: [C-PALSY] Nursing homes
no, that was Reagan! he signed the lanterman act too, so I think he had
the
right idea but just didn't think it all the way hrough when it came to
the
mentally ill.=20
just how can we prepare folks from basically jail in nursing homes, to
supported or independent living?
community support should mean just that. How do you do it? by giving
people
choices. gradually they will learn what they want and need to do.=20
Tamar Raine
[log in to unmask]
Now serving tee shirts! and soon to come, Maui posters and other items;
www.cafepress.com/tamarmag
> [Original Message]
> From: Linda Walker <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 9/20/2006 9:02:58 PM
> Subject: Re: Nursing homes
>
> Agreed. I love Jerry Brown but one of the shortsighted things he did=20
> was move the mentally ill from the hospital to the street in a similar
effort.
>
> At 05:17 PM 9/20/2006, you wrote:
> >I don't know if I'm selling anyone short but I'm questioning how
ready
are
> >they to leave the nursing home. I feel we did basically the same
thing
in
> >the 70's when we were moving people out of institutions, one day the
> >institution the next day a apartment and out in the community, and
there
> >were no transition period. My father remembers one gal who was in
the
> >institution for years and she happened to be in his store and went
bananas,
> >so they had to call the police. Nothing against independent living,
I
enjoy
> >my freedom, but sometimes I feel we get too excited with concepts and
> >political correctness instead of fully preparing and witnessing
bigger
> >success.
> >
> >Thanks,
> >Anthony
> >www.anthonyarnold.net
> >(I blog)
> >
> >-----Original Message-----
> >From: Cerebral Palsy List [mailto:[log in to unmask]] On
Behalf
Of
> >Mike Collis
> >Sent: Wednesday, September 20, 2006 9:30 PM
> >To: [log in to unmask]
> >Subject: Re: Nursing homes
> >
> >Anthony, if they can live in the community, why not? I don't think
they
> >can overdo something like that. Case in point, an acquaintance of
mine
in
> >Richmond was 21 or 22 when he moved in into the apartment across
mine.=20
He
> >is a spastic quad C.P. and would be considered nonverbal. I didn't
think he
> >would be able to make it, but he is. Don't sell anyone short.
> >
> >-----Original Message-----
> >From: Cerebral Palsy List [mailto:[log in to unmask]] On
Behalf
Of
> >Anthony Arnold
> >Sent: Wednesday, September 20, 2006 3:02 PM
> >To: [log in to unmask]
> >Subject: Nursing homes
> >
> >Friends,
> >
> >
> >
> >I have a question, and I'm neither for or against this practice
because I
> >feel living situations should vary from case to case. I don't think
if
you
> >know this or not, but I'm on the board of a ILC. And at our center
in
> >recent years, they have began helping people break out of nursing
homes,
> >which is fine for some and not fine for others, and I'm truly glad
that
we
> >offer this service, but recently they were assisting a person get
out,
and
> >word traveled around the facility, and they soon had 5 people wanting
to
get
> >out. Nothing against this practice, I wouldn't want to be in a
nursing
home
> >myself, but I feel that they sometimes over do it. Have you noticed
this in
> >your communities as well?
> >
> >
> >
> >Thanks,
> >
> >Anthony
> >
> > <http://www.anthonyarnold.net> www.anthonyarnold.net
> >
> >(I blog)
> >
> >
> >
> >
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