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St. John's University Cerebral Palsy List
Date:
Sat, 11 Oct 2003 18:57:33 EDT
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Kathy Jo, I have said this before;
Your parents need you to grow up and become as independent as possible.

In the end, that is what will make them happy, and it will give them peace in
their old age as they become unable to assist you. They don't want to worry
about you in your 40's and still at home, unable to be independent.

I've just returned from a two day conference where everybody (400 with
disability) had a disability (CP, autism, down syndrome, cognitive, and emotional
disabilities) and were either on their own with assistance, or they were
learning what they needed to do in order to do so.  The range went from people who
need complete help with everything, to people who are functioning with mild
cases of CP, or cognitive disabilities. Everybody was there with their assistants,
or their house mates from a new type of living arrangements called adult
family homes where they have chosen to be part of a household where they have the
help they need but not any of the awful rules of traditional group homes.

There were seminars on every conceivable topic, from self employment, to how
to protect yourself from sexual abuse, to finding creative ways of funding
entertainment and vacations.

Gary was there too, he can tell you other aspects of it.  Jump right in,
Gary!
In the meantime, I need to write to the hotel because my bathtub didn't have
grab bars and I did slip and fall. Ugh! Makes me mad, because we've had this
conference there every year for eight or nine years, you'd think they would
have put more grab bars in.

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