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Subject:
From:
Kathy Jo Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 10 May 2005 15:37:11 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (189 lines)
Mag,



it was NOT an Independent Living Center.  It was R.E.M.  I get my
funding from my county.  The county is saying no, we can't afford
R.E.M.  R.E.M. was perfect!  I met with my Independent Living Center
last fall and I have my social Worker from the county that I live in and
the Independent Living Center Specialist said she should be helping me
and she isn't.  (Besides Cornerstone.)



Kathy











Tamar Raine wrote:

>Independent Living centers usually   are funded by the Federal government,
>so, I don't understand what you mean by it being too expensive.
>
>Mag
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>Please ask your Congressperson to vote FOR the MICASSA bill, this
>will allow medicaid funds to pay for community supports
>instead of isolating the person in a nursing home or institution.
>HR 910 is the bill number
>Senate version of MiCASSA (S 401).
>
>Oakland Mayor's Commission on People with disabilities
>~Tamar Mag Raine~
>[log in to unmask]
>IM: tamarmag48
>Yahoo IM Tamarmag56
>
>
>
>
>>[Original Message]
>>From: Kendall David Corbett <[log in to unmask]>
>>To: <[log in to unmask]>
>>Date: 5/9/2005 11:00:43 AM
>>Subject: Re: new member intro and some well-meant comments...
>>
>>Kathy Jo,
>>
>>As Ken and Bobby said, CP isn't something you "get over."  Your
>>statement reminded me of some "well meaning 'friends'" of my mom when I
>>was in school.  They were positive that if my/her faith were strong
>>enough, that I could be "normal."  I've got two major problems with
>>that.
>>
>>1.      I think I was and am pretty much normal, even if I do use a
>>wheelchair.  I did "normal" things other kids did, although maybe a
>>little differently;
>>2.      G_d probably had (and has) other things in mind for me than
>>testing my faith (or my mom's faith, for that matter) with my
>>disability.  I'm not sure what those things are, but I think if I do the
>>best I can with what I've got, G_d will be OK with that.  =20
>>
>>As far as "getting over CP," I think we learn better ways to cope with
>>the challenges that we encounter, whether they be physical obstacles, or
>>the attitudes of others.  I've learned to just ignore people like my
>>mom's former "friends," because it's just not worth the effort to try
>>and educate some people.  I spend a _lot_ of time personally and
>>professionally working with little kids on disability awareness
>>activities, because they seem to be the most receptive.  That doesn't
>>mean I ignore older kids and adults, but I give them about three chances
>>and move on. =20
>>
>>You said the first IL center you checked out was "too expensive."  Get
>>in touch with the folks at the Waismann Center, and find out if they
>>have someone who can help you to develop a plan to achieve the level of
>>independence you'd like.  Here's contact info.
>>
>>Waisman Center=20
>>University of Wisconsin-Madison=20
>>1500 Highland Ave=20
>>Madison, WI 53705-2280=20
>>Main Phone:  608-263-1656=20
>>Main Fax:  608-263-0529=20
>>Website:  http://www.waisman.wisc.edu/=20
>>
>>Carl Durocher can get you in touch with the right folks at Waismann,
>>
>>Carl Durocher
>>608-265-2544
>>[log in to unmask]
>>
>>and Linda Rowley can give you other contacts throughout Wisconsin
>>
>>Linda Rowley, LPN, BS
>>608-263-5973
>>[log in to unmask]
>>
>>=20
>>        =20
>>=20
>>
>>Kendall Corbett
>>
>>An unreasonable man (but my wife says that's redundant!)
>>
>>The reasonable man adapts himself to the world; the unreasonable one
>>persists in trying to adapt the world to himself. Therefore, all
>>progress depends on the unreasonable man.
>>-George Bernard Shaw 1856-1950
>>
>>-----Original Message-----
>>From: Bobby Greer [mailto:[log in to unmask]]=20
>>Sent: Sunday, May 08, 2005 3:44 PM
>>To: [log in to unmask]
>>Subject: Re: new member intro and some well-meant comments...
>>
>>Kathy Jo,
>>
>>    Acceptance is action and action is an ongoing process.
>>For example, if you let others "decide for you", that is not action it's
>>giving up. Action is looking into where you might want to stay and
>>making a
>>decision. You speak of "accepting CP" as if it were an event, but it is
>>not,
>>it is a lifetime process.
>>
>>Bobby
>>----- Original Message -----
>>From: "ken barber" <[log in to unmask]>
>>Newsgroups: bit.listserv.c-palsy
>>To: <[log in to unmask]>
>>Sent: Sunday, May 08, 2005 5:02 PM
>>Subject: Re: new member intro and some well-meant comments...
>>
>>
>>
>>
>>>  i said "is it true?" have you gotten over cp? maybe
>>>you should pay attention to some of the email you get.
>>>
>>>   you do not just out grow cp. its not an allergy.
>>>
>>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>>
>>>
>>>>Huh?
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>ken barber wrote:
>>>>
>>>>
>>>>
>>>>>well, has it been true?
>>>>>
>>>>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>>>>
>>>>>From
>>>>>
>>>>>
>>>>>>the time I was age
>>>>>>ten to age twenty-nine, everyday I was told that I
>>>>>>would walk and get
>>>>>>over C.P. later in my life...
>>>>>>
>>>>>>Kathy Jo Pink
>>>>>>
>>>>>>
>>>__________________________________________________
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>>>
>>>
>
>
>
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