Anthony,
Do you mean I should do as much of my cares myself (even though, they are
assignments by my state and county by a RN)?
Kathy
>From: Anthony Arnold <[log in to unmask]>
>Reply-To: Cerebral Palsy List <[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Babysitter Issue
>Date: Sun, 2 Apr 2006 18:19:28 -0500
>
>Seeing this discussion come up reminds me of my first personal care
>attendant I had right after I decided to move out of my parent's house. At
>that time we didn't really know how much assistance I would need, so we
>decided to hire a live-in attendant, and the guy we hired worked
>wonderfully
>to the most part. Before we hired him, he spent several years working for
>nursing homes where everything is structured, and when he came to live with
>me, I had a structured schedule to follow, and whenever we decided to go
>outside to sit he would call my parents to tell them until my parents
>finally told him they appreciate it but they don't need or want to know
>everything and that I could basically do anything. And now 8 years later,
>I'm basically independent with a attendant coming in a few hours a day. I
>can come and go any time I please besides the hours I work which is
>understandable.
>
>Kathy, I know this is something you don't want to hear, but I think you
>have
>to prove yourself before they grant you the level of independence you want.
>It's a lot like if I had a 16yr old daughter, she would need to prove
>herself before I would give her the car keys. I think it's this common
>principal we have to follow in independent living too. I have even had to
>prove myself at work, and recently I got my 4th raise in 5 years. Sure
>everybody likes chocolate cake but it doesn't come without paying a price.
>
>Thanks,
>Anthony
>Visit my website at www.anthonyarnold.net
>-----Original Message-----
>From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
>[log in to unmask]
>Sent: Sunday, April 02, 2006 5:31 PM
>To: [log in to unmask]
>Subject: Re: Babysitter Issue
>
>I know of one woman her parents are partly paying for her care. Her
>attendants won't let her have any true freedom. Some care providers have
>it in
>their procedures to be so by the book it's like you're a child under their
>care
>instead of being a disabled adult needing basic care.
>
>Walk away before I finish what you started. Face to face I will put you in
>your place. End this game before I finish what you started. Face to face
>everything will change.
>
>"Stand Up" by Trapt
>
>-----------------------
>
>To change your mail settings or leave the C-PALSY list, go here:
>
>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
>-----------------------
>
>To change your mail settings or leave the C-PALSY list, go here:
>
>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
_________________________________________________________________
Express yourself instantly with MSN Messenger! Download today - it's FREE!
http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/
-----------------------
To change your mail settings or leave the C-PALSY list, go here:
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
|
