Dear list members of many disabilities, researchers and doctors,
  My name is Russ and suffer from a rare condition called Friedreich's
Ataxia.  As an ataxian we have many symptoms such as cardiomyopothy, eye,
ear, no reflexes, no ballance, poor speed and coordination, speech problems,
depression(some of us) and so on.  In time you may learn more by asking the
correct questions and I too would like to know more of and about your
disabilities.  The reason I have joined 30+ lists is simple; I feel WE have
all gained enough knowledge to help each other.  What may help people of my
condition may verry well help another and vice versa and so on.  I will
mediate for 2 months and return only to my list linked below, please concider
joining before 2 months has ended.  When you have a question post it or send
it privately with "Russ-" in the subject and a brief discription and I will
broadcast it, or act as a mediator and send it to many list; other wize I may
delet it.  Please, moderators, I ask for 2 months and if you have problems
with these arrangements please privately email me.
  I'll begin; I purposely joined an Reflex S? D? list because I as an ataxian
has poor or no reflexes.  Is there anything that can help?  Antioxadants
might be of help to you, especialy one called NAC (even with or without vit
E) which you can purchase cheeply at GNC.  It also comes in a liquod
perscrition form called mucosil.  Another antioxadant which helps for our
cardiomyopothy is called coQ-10 also avaliable at GNC.  Another good
questions is most ataxians eyes skip and jump instead of smoothrolling and it
make reading and focussing dificult, it's called nystagmus I think.  Anyone
have any treatment ideas?  Not so much drug ideas but more like sensible old
wives tails?
What about ballance?  Anyideas there?  NAC can have another advantage there
along with vit E.  I really would like us al to share ideas.
Russ White
Orlando, FL
 <A HREF="http://www.onelist.com/group/GeneticDisabilitiesUnite">ONElist :
GeneticDisabilitiesUnite</A>
 <A HREF="http://members.aol.com/rwtw128/mypage.html">My Autobiography</A>
"Do not suppose that, if you find something hard to achieve, it is beyond
human capacity; rather, if something is possible and appropriate for man,
assume that it must also be within your own reach." - Marcus Aurelius, _The
Meditations_