John, you're finding out Medicare and Medicaid have an "institutional bias" which effectively limits us who use them to those items we need to function in the home only.  They don't care if we have a life outside the home. :p  That why they fight us all the time.  And Don't get me started about the "institutional bias" towards nursing homes.    



---- Original message ----

>Date: Fri, 26 Jun 2009 08:32:53 -0600

>From: JOHN RUNER <[log in to unmask]>  

>Subject: Adaptive Mall fund Raising?  

>To: [log in to unmask]

>

>Has anyone here used the Adaptive Mall "kiddie Pool Fundraiser"

>program?  I am trying it to purchase Mary's adaptive indoor/outdoor

>stroller.  I did find her a jogger that I am going to pay shipping on 

>(thank you sir!!), but I am still working on a regular special needs

>stroller for doctors visits and the like (the jogger I think will be

>quite large in my little car.)  It just seams ludicrous that medicaid

>wants to fight so hard against a little girls needs.  I a have friend

>with a severely physically disabled child and she had to fight for year

>for a wheel chair!  If you haven't seen this funding deal it seams like

>a good idea.

>

>Here is Mary's link so you can see what it looks like:  http://www.adaptivemall.com/maryb.html

>

>

>

>Thanks,

>

>John Runer-Dad to Mary 9 RH and cognitive deals

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