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Subject:
From:
Dave & Tammy Canfield <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Fri, 13 Aug 1999 10:27:24 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (30 lines)
Hi all,

I have a fast question for all of you.  First thing I should explain is our
situation for those of you who don't know.

I have right-hemiplegia type CP resulting from a stroke before birth or
right after.  I now have 3 "natural" children as well as three older
children adopted from my wife's previous marriage.  Of the three natural
children two of them have CP.  One is a hypotonic quad and one is a spastic
quad.  Both of their MRI came back normal so their exact diagnosis is
"cerebral palsy with unknown origin".

To make matters more interesting my dad may very well have CP.  As a child
he was diagnosed with polio.  Later that diagnosis was withdrawn, but to
this day he still has the "CP gait" and keeps his left hand in his pocket
constantly.

Further back, my great aunt had "severe" CP, or at least what they called
severe CP at the time and lived in an institution.

This raises serious questions about the genetic nature of CP.  When the two
kids were diagnosed the neurolgist suggested genetic testing.  At the time
we refused, but now we are raising questions.  Not a big concern, just
curious and wondering if any of you on this list have more than one
generation of CP in your family.

Dave, adult rh
Koltin, mild hypotonic
Rebekah, mild spastic

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