Susan,

        There is another list connected with this server. The e-mail address is
<[log in to unmask]>.

        I am also sending a copy of listserv research ethics, I just happen
to recieve this morning:

        - Are you a participant in the group or just an observer?
- Is the group aware of the research being done and what will happen with
the research findings?
- Was permission obtained from the group for you to study and write about it?
- Are the people who own or run the list aware of the purpose of the
research, and have they given their permission?
- Is the group's messages easily accessed by internet users (is it a public
space?) or is it operated privately with restricted access?
- Do the group members PERCEIVE the group as being private?
- Are the identities of the group member's protected (anonymity) in any
reports of the research?
- Is the identity of the group itself protected in the reports?
- Is informed consent (permission) obtained for the use of quotes or for
mentioning specific members?
- Are group members who are quoted or mentioned in the report still active
in the group?
- Is their any possibility of harm to group members by the research and
what is discussed in the research report?
- Has the research been approved by a research ethics committee?
- Is it possible for outsiders to find messages in the group by using web
search engines?

I hope some of this is helpful. I have been a participant of this list for
almost four years. I am also a Ph.D., so if I can offer advice, emotional
solace, whatever; feel free to ask.

Good luck,

Bobby

>Hi!
>
>I am a pediatric physical therapist and have gained a lot of insight by
>being on this email list.  Now I have a question for you - For my
>doctoral dissertation I am interviewing parents of 5-year old children
>with severe cerebral palsy, collecting information on the mobility
>skills of the children and quality of life for children and families.
>Is there any way to set up a way for parents on this list to email me if
>they would like to participate?  The telephone interview lasts about 30
>minutes, and the family receives $20 for participating.  There is such a
>great need for accurate information in this area, and parents are the
>obvious best source.  Can somebody out there give me some guidance as to
>how to proceed?