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Subject:
From:
"Cleveland, Kyle E." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 8 Jul 2002 08:13:33 -0400
Content-Type:
text/plain
Parts/Attachments:
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Some hints to help, Patrick, as I've had some simliar stuff in the recent
past:

1)  The pharmacy that only had a limited amount of meds is obligated to do a
"partial fill", with the understanding that you can pick up the balance
later.  For them not to offer you this option is incredibly unethical.

2)  When you know that your med supply is running low, call the pharmacy and
let them know the drug and dosage you need.  Phenobarb is pretty ubiquitous,
so it's a no-brainer to order.

3)  Try to locate a 24-hr pharmacy nearby.  They're not everywhere, but
they're not uncommon either.  Look in the "yellow pages" for a block ad
stating hours.  If you're in Denver proper, you should have no problem.  I
have my pain meds filled at such a pharmacy.  Note that because they are
opiates, the pharmacy will not allow me to pick them up between 11:00 pm and
7:00 am (for security reasons), but I can drop the script off anytime and
pick it up the next morning at 7:00 sharp.

4)  Phenobarb, I think, is not on the schedule of drugs that requires a
maximum 30-day script (am I right on this, Bobby?).  Maybe you can get your
doc to write an extended script.

5)  The local emergency room almost always will give you a one day's supply
of any med if you present the valid script.  You might get popped for an ER
visit, but it might be better than not having any meds at all.

6)  Take a trip to the local firehouse.  The paramedics usually have a
pretty extensive drug kit, and they would rather hand you a couple
barbituates than make a run to your home.

All of the above suggestions came from a close friend who happens to be a
pharmacist.  He was over at the house last night and I showed him the email
( didn't print your name, btw.  He doesn't know you from Adam, of course,
but I'm sure you don't want just anyone looking at your email).

Believe me, Patrick, you have my empathy.  I'm currently taking a pain med
that has created hysteria in the media due to its abuse potential.  Even if
I have my suit still on (If I go to the pharmacy right after work), I get
treated suspiciously if I go to a "new" pharmacy for these meds.

I take it you are on a fixed income and limited in the quality and quantity
of MDs, hospitals and pharmacies you can use?  I know that it can be
frustrating.  The medical establishment almost stands alone in the statement
"you get what you pay for).

-Kyle

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