did not know nih was giving any grants and since cdc and nih are partof the
same department, usually we can pick up on knowing this kind of stuff. what
type research are they doing?

-----Original Message-----
From: Linda Wagner [mailto:[log in to unmask]]
Sent: Friday, June 29, 2001 10:38 AM
To: [log in to unmask]
Subject: Fw: Adults and CP


I wrote an e-mail to Dr. Brunstrom after hearing about the piece she did on
the Today Show about my "case" and she actually responded.  I've forwarded
parts of her message below because I was curious if anyone has any
experience with the "functional electrical stimulation" she mentions or if
anyone knows anything about the drug testing she mentions.  I am strongly
considering a trip out there but need to look at insurance
coverage/costs...Anyone have any experience with these folks in St. Louis?

Linda
----- Original Message -----
From: Jan Brunstrom <[log in to unmask]>
> I am very impressed with your workouts!
> I am a little dismayed that you feel weaker after your hamstring
> lengthening and am trying to figure out why.
>
> If you could make it to St. Louis, I think it might be worth the trip.
> First, because there are functional electrical stimulation techniques that
> may help augment your strength training.
> Second, because I have PT colleagues who are trained in sports medicine
who
> work with my teenage and adult patients and they could really help you
> design a program to improve your strenght and balance safely. (The program
> is a real work out but not boring like "traditional PT"... and it seems to
> me you are the kind of person who would smile at the challenge of a tough
> workout).
>
> Thirdly, we are investigating a new medicine for spastic diplegia
(actually
> and old medicine but one that is not typically used for Spastic diplegia).
> We just submitted a grant to the NIH and, if it gets funded, you would be
a
> great candidate. We won't know about funding for several months though.
> Our preliminary data shows a big improvement in balance.
>
> Let me know if you'd like to come see me.
> You can contact my secretary at 314-454-6120.
>
> Thanks again for your email.
> Dr. Jan
>
> Jan Brunstrom, M.D.
> Assistant Professor of Neurology and Cell Biology
> Washington University School of Medicine
> Director, Pediatric Neurology Cerebral Palsy Center
> St. Louis Children's Hospital
> One Children's Place, Rm 12E25
> St. Louis, MO. 63110
> phone 314-454-6120 (clinical) or 314-747-4443 (voice mail)
> Fax: 314-454-2523 (clinical) 314-362-7463 (research)
>
>
>