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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 16 May 2002 10:07:55 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (124 lines)
thanks,
   it is good to know what has worked for others.

-----Original Message-----
From: Cleveland, Kyle E. [mailto:[log in to unmask]]
Sent: Thursday, May 16, 2002 10:02 AM
To: [log in to unmask]
Subject: Re: Hey Ken


Ken,

I know we are starting to sound like walking pharmacies, but I've had a bit
of luck lately with an old tricyclic antidepressant called Elavil
(amitriptyline).  It's one of those drugs that takes a while to build up
serum levels, so it's not very effective the first few nights.  While not
specifically designed for relief of neuropathic pain (which, I think, is
what's happening in your hands/wrists), it has a secondary effect of being
therapeutic for this condition.

I was researching ways to cut back on my use of opiate pain meds, and came
across Elavil as a possible alternative.  My pain doc, at my suggestion,
prescribed a very low dose (10 mg) once a day at bedtime.  He started out
slowly to see if I could tolerate the stuff, and now were up to 50, then 100
at bedtime.  It doesn't completely knock down the pain, but it makes it
tolerable enough that I can get 6-7 hours in (usually).

Just thought I'd pass it along, Ken.

-K.

-----Original Message-----
From: Barber, Kenneth L. [mailto:[log in to unmask]]
Sent: Thursday, May 16, 2002 9:37 AM
To: [log in to unmask]
Subject: Re: Hey Ken


well the last two nights i have got at least 5 hours. that is normal for me.
i only sleep longer than that on some saturdays. world of difference in 2-3
hours and 5-6 hours.
   when i was awake with ambion, i saw nothing strange. i was just awake.
   the past two nights (sunday night and monday night) it was mainly that
the pain in my fingers and feet were past the ignore threshhold.

-----Original Message-----
From: Cleveland, Kyle E. [mailto:[log in to unmask]]
Sent: Thursday, May 16, 2002 9:27 AM
To: [log in to unmask]
Subject: Re: Hey Ken


Wow!  Was your mind just racing along when you tried to sleep?  I was going
through this recurring anxiety/depression thing  before the last time I used
Ambien, and I just couldn't get my mind to slow down.  Like I said, it
worked great for me, but I had to be careful and take it right before lying
down.  If, for some reason, I stayed up, really carzy stuff would happen:
I'd see things like the carpet moving, or talk to people that weren't
there--hallucinations, I guess.  I was never afraid of what I was seeing,
and sometimes I would even remember the next day what I saw the previous
night.  After that happened a few times, I was careful to make sure nothing
prevented me from going right to bed after I took the med.  Once I was out,
though, I was out cold for the night.

Sounds like there might be some underlying reason you can't get to sleep,
like my anxiety/depression.  Have you thought about  checking out a "sleep
clinic"?

-K.

-----Original Message-----
From: Barber, Kenneth L. [mailto:[log in to unmask]]
Sent: Wednesday, May 15, 2002 2:32 PM
To: [log in to unmask]
Subject: Re: Hey Ken


that is what the physicians assistant told me. she said if she took it she
was out cold. there was 10 pills. i slept some of the nights but in about 5
i did not.

-----Original Message-----
From: Cleveland, Kyle E. [mailto:[log in to unmask]]
Sent: Wednesday, May 15, 2002 2:25 PM
To: [log in to unmask]
Subject: Re: Hey Ken


If you didn't sleep with Ambien, friend, you are in a pickle.  That stuff
laid waste to me.

-K

-----Original Message-----
X-Sybari-Trust: 33b67d46 1fc6593e a78b9402 0000003d
From: Barber, Kenneth L. [mailto:[log in to unmask]]
Sent: Wednesday, May 15, 2002 10:43 AM
To: [log in to unmask]
Subject: Re: Hey Ken


I HAVE TAKEN IT BEFORE AND AT TIMES IT WORKED AND AT TIMES I STILL DID NOT
SLEEP. oops, caps lock on. sorry.

-----Original Message-----
From: BG Greer, PhD [mailto:[log in to unmask]]
Sent: Wednesday, May 15, 2002 10:37 AM
To: [log in to unmask]
Subject: Re: Hey Ken


>He said that insomnia can get to be a vicious cycle where you get
>so tired that you can't sleep.  The med broke that cycle, but it isn't
>something you would want to take for an extended period of time.
>
>-Kyle

Kyle and Ken,

    My new doc told me Ambien is not a benzo. Kyle is correct, when I used
it, it works like a charm.

Bobby

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