C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
"Denise D. Goodman" <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sun, 20 Feb 2000 10:36:55 EST
Content-Type:
text/plain
Parts/Attachments:
text/plain (39 lines)
Thanks ISM for sharing the article.  As I never watch the super bowl- I had
NO idea the commercial existed.  How very disburbing.  Speaking as someone
who has lived in denial for most of her life, I know first hand how
destructive it is when you refuse to accept reality.  It's one thing to
choose this path for yourself, but it is another entirely when you try
bringing others along for the ride.

Beth is correct also- the money spent to spread the "message" could have gone
to helping people face the real obstacles of daily living.  I want to know,
was this his personal money?  Sort of blows my mind to spend so much to
indulge in fantasy.

I think Reeves is wrong- there isn't a lack of hope- there is a lack of
scientific options.  We can clone sheep, genetically engineer and manipulate
dna, go to the moon, mars and more, but there are still limits.  Some things
can't be fixed.  CP is brain damage, the only cells in the body that won't
regenerate (as far as I understand).  Even a liver at the brink of
destruction from alcholism, given half a chance without the toxic alcohol,
can restore itself.   Of course anyone with a spinal cord injury or brain
damage "hopes" it can be fixed- but you can't live on hopes of what most of
us will never see in this lifetime.

When I was a child, I had dreams of walking "normal."  I did my exercises
non-stop pretending I was a prima ballerina- or an olympic hopeful.  I
experimented and wore my night braces for three days straight.  I childishly
thought if over night was helpful- all the time was better.  I finally had to
abandon the marathon brace wearing when my feet started to chafe and bleed.
I worked on my exercise routines for months- no closer to realizing my
"dream."  The only thing I accomplished was feeling even worse about myself.
Feeling I must not have tried hard enough, or been good enough to walk
straight.  It never occured to me my dream was simply not physically
possible.

I'm sorry to ramble so, but hearing about this put me in mind of my younger
days.  I worry for those who latch on to these "Impossible Dreams" like
Reeves promotes.  I know too well all that waits at the end of that rainbow
is disappointment and self-blame.  - Just my opion and thanks for listening:
Denise.

ATOM RSS1 RSS2