Ditto what Pam said. Plus, my scoliosis (curvature of the spine) has gotten worse so it hurts more, AND my collarbone has been pushed forward so there's pain there too.
Thanks,
Tamar
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
It is not our differences that divide us.
It is our inability to recognize, accept, and celebrate those differences.
~ Audre Lorde
________________________________
From: Pam Dahl <[log in to unmask]>
To: [log in to unmask]
Sent: Monday, October 7, 2013 11:36 PM
Subject: Re: C-PALSY Digest - 3 Oct 2013 to 7 Oct 2013 (#2013-47)
In response to Kathy Jo's question about cerebral palsy and aging, my
experience has been that my joints have worn out faster because of the
extra wear caused by c.p.. I also have more athetosis and spasticity than
I used to have. I'm not sure why.
Pam
On Mon, Oct 7, 2013 at 9:01 PM, C-PALSY automatic digest system <
[log in to unmask]> wrote:
> There are 5 messages totaling 183 lines in this issue.
>
> Topics of the day:
>
> 1. CP And Aging (5)
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ----------------------------------------------------------------------
>
> Date: Mon, 7 Oct 2013 09:39:08 -0500
> From: Kathy Jo Pink <[log in to unmask]>
> Subject: CP And Aging
>
> I know we talked in depth about this before,,, but, does Cerebral Palsy
> get worse with age?
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Mon, 7 Oct 2013 11:49:44 -0300
> From: Carla Rockwell <[log in to unmask]>
> Subject: Re: CP And Aging
>
> Then you answered your own question, Kathy Jo :)
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Mon, 7 Oct 2013 09:40:55 -0600
> From: Virginia Perry <[log in to unmask]>
> Subject: Re: CP And Aging
>
> I know you're gonna hate this answer, but it depends.
>
> If you overuse weak joints when you are younger, then yes. My dad walked
> for years with crutches and leg braces. Finally his rotator cuffs just wore
> out. Now he's in a zippy electric chair (70 yrs old).
>
> The paper here (Chattanooga Times Free Press) just had an article about a
> man with CP in a similar situation. He can no longer (at 50) do the things
> he used to do.
>
> I'm being careful with my son (14) who has CP to look at life-span
> mobility. Some days, when he is very active, I notice more tremors, more
> spasticity. I think he talks less, too, after physically stressful days.
> We've started using his wheelchair more now.
>
> Life overall is stressful, so I suspect the effect may be cumulative.
>
> Sorry, Kathy.
>
> Virginia
>
> > Date: Mon, 7 Oct 2013 09:39:08 -0500
> > From: [log in to unmask]
> > Subject: CP And Aging
> > To: [log in to unmask]
> >
> > I know we talked in depth about this before,,, but, does Cerebral Palsy
> get worse with age?
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
> ------------------------------
>
> Date: Mon, 7 Oct 2013 12:35:08 -0400
> From: Kathleen Salkin <[log in to unmask]>
> Subject: Re: CP And Aging
>
> There's no one definitive answer, Kathy Jo. It depends on the person and
> how active they can be.
>
> Kat
>
>
> On Mon, Oct 7, 2013 at 10:39 AM, Kathy Jo Pink <[log in to unmask]
> >wrote:
>
> > I know we talked in depth about this before,,, but, does Cerebral Palsy
> > get worse with age?
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
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>
> ------------------------------
>
> Date: Mon, 7 Oct 2013 11:35:38 -0600
> From: Kendall Corbett <[log in to unmask]>
> Subject: Re: CP And Aging
>
> KJ,
> Are there specific issues that are becoming more difficult? If so, let us
> know what they are, and I'm pretty sure someone has encountered something
> at least similar. If it's something you'd rather not discuss with the
> whole list, I bet there are people who'd discuss them off-list, I'd be
> glad to, but there are likely some issues that I have no idea about that
> Virginia, Carla or Kat will be better at answering than me. If I can help
> and you feel uncomfortable asking about a specific issue on-list, send me a
> private e-mail.
>
>
> On Mon, Oct 7, 2013 at 10:35 AM, Kathleen Salkin <[log in to unmask]
> >wrote:
>
> > There's no one definitive answer, Kathy Jo. It depends on the person and
> > how active they can be.
> >
> > Kat
> >
> >
> > On Mon, Oct 7, 2013 at 10:39 AM, Kathy Jo Pink <
> [log in to unmask]
> > >wrote:
> >
> > > I know we talked in depth about this before,,, but, does Cerebral Palsy
> > > get worse with age?
> > > -----------------------
> > >
> > > To change your mail settings or leave the C-PALSY list, go here:
> > >
> > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> > >
> >
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY list, go here:
> >
> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
>
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
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>
> ------------------------------
>
> End of C-PALSY Digest - 3 Oct 2013 to 7 Oct 2013 (#2013-47)
> ***********************************************************
>
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