Thinking more about what my AB friend said, leads me to a bigger question:
Do we have "expectations" of people, AB or otherwise, to understand the
issues we face?  For example, I know that my current physical spiral is not
understood at all by my parents.  After all, the docs said that their kid
would get no worse, right?  So there is denial on their part as to my
needing canes, disabled parking placards, etc.

I think well-meaning, but (most likely) uninformed generalities like that
which will be portrayed in the upcoming movie will lead a lot of folks to
have misguided expectations on both sides of the AB/TAB fence.

Food for thought....

-Kyle

-----Original Message-----
From: Salkin Kathleen
To: [log in to unmask]
Sent: 7/6/02 11:40 AM
Subject: Re: A new aging survey for the list

I gather your friend's AB, right?  OK...

On a similar note, I opened my latest issue of TV Guide to discover an
item
about an upcoming TV movie about a CP who is a door-to-door salesman who
has
not missed a day of selling.  Not that I'm begrudging the story, but I
almost had a fit at reading CP described as a "disease."  <hits head on
keyboard in frustration.>

Kat

----- Original Message -----
From: "Cleveland, Kyle E." <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Saturday, July 06, 2002 11:31 AM
Subject: Re: A new aging survey for the list


> Sign me up for the survey, Bobby.
>
> I met with an old friend for breakfast yesterday (old in the sense
that
> we've known each other for a long time, but we still talk at least a
couple
> times a week).  I was telling him about the web page idea.  Could not
> believe his response.  Something along the lines of, "Well, you know,
you
> have to be careful not to invest too much time into something like
this.
It
> could take away from your family time.  Also, I would hate to see you
start
> taking your 'identity' from your disability."
>
> It's amazing how people are so quick to pour cold water on other's
> excitement and so slow to encourage.
>
> -Kyle
>
> -----Original Message-----
> From: BG Greer, PhD
> To: [log in to unmask]
> Sent: 7/5/02 12:20 AM
> Subject: Re: A new aging survey for the list
>
> In a message dated 7/4/02 7:20:44 PM, [log in to unmask] writes:
>
> >I would, of course.  And you might add "paraplegia" to the location
> list.
> >
> >Kat
>
> I will be cantankerous and stick with diplegia. LOL Actually, I plan
to
> reformat Carla's original 10 questions. I hope we get a better
response.
> How
> far along are you on the new web page?
>
> Bobby