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Date: | Fri, 28 Sep 2007 22:24:22 -0400 |
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As far as I'm concerned, I moved from Richmond, VA to Asheville, NC in November, 2005. I moved into my own Apartment here in July 2006. I've lost weight too. about 20-30 pounds. C.P. wise, I can't complain. I don't have any iaaues. I'm glad you are doing well. My dad died in April 2004.
---- Original message ----
>Date: Fri, 28 Sep 2007 21:56:43 -0400
>From: "Cleveland, Kyle E." <[log in to unmask]>
>Subject: Re: Hello again
>To: [log in to unmask]
>
>OK, so how's everyone doing CP-wise? As for me, I've found Botox. Anyone else have any experience with this stuff? It's been a godsend for me. I get shot about every 3 months or so and a heck of a lot of stretching in between. I guess we're going to start using some drug called "Myoblock" next time around. Apparently the body doesn't develop the same accomodation to the botulin toxin. I also found a kick-butt orthotist in town that built an incredible AFO for me--makes a night and day difference in my gait.
>
>Last year I had an aneurysm pop somewhere in my gut and came pretty close to going 'casters up'. The net result was that I lost about 30 pounds in the hospital and have managed to keep it off. That helps enormously. Every pound you lose is one pound less to carry on a battered old frame.
>
>I've also found a new med called Lyrica (pregabalin). The stuff originally was prescribed for folks with diabetic nerve pain, but they are discovering it helps with a host of CNS issues. My pain load has dropped remarkably. Lyrica and Zanaflex (tizanidine) at night are the only two CP meds I'm taking now. I'm doing better than I have been in years.
>
>Enough about me, what about everyone else? Bring me up to date on everything.
>
>Kyle
>
>________________________________
>
>
>---- Original message ----
>>Date: Fri, 28 Sep 2007 15:02:18 -0700
>>From: ken barber <[log in to unmask]>
>>Subject: Re: Hello again
>>To: [log in to unmask]
>>
>>we occasionally talk about cp if we have to.
>
>
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