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Subject:
From:
"Michael H. Collis" <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Fri, 28 Sep 2007 22:24:22 -0400
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As far as I'm concerned, I moved from Richmond, VA to Asheville, NC in November, 2005.  I moved into my own Apartment here in July 2006. I've lost weight too. about 20-30 pounds.  C.P. wise, I can't complain.  I don't have any iaaues.   I'm glad you are doing well.  My dad died in April 2004.   

---- Original message ----
>Date: Fri, 28 Sep 2007 21:56:43 -0400
>From: "Cleveland, Kyle E." <[log in to unmask]>  
>Subject: Re: Hello again  
>To: [log in to unmask]
>
>OK, so how's everyone doing CP-wise?  As for me, I've found Botox.  Anyone else have any experience with this stuff?  It's been a godsend for me.  I get shot about every 3 months or so and a heck of a lot of stretching in between.  I guess we're going to start using some drug called "Myoblock" next time around.  Apparently the body doesn't develop the same accomodation to the botulin toxin.  I also found a kick-butt orthotist in town that built an incredible AFO for me--makes a night and day difference in my gait.
> 
>Last year I had an aneurysm pop somewhere in my gut and came pretty close to going 'casters up'. The net result was that I lost about 30 pounds in the hospital and have managed to keep it off.  That helps enormously.  Every pound you lose is one pound less to carry on a battered old frame.
> 
>I've also found a new med called Lyrica (pregabalin).  The stuff originally was prescribed for folks with diabetic nerve pain, but they are discovering it helps with a host of CNS issues.  My pain load has dropped remarkably.  Lyrica and Zanaflex (tizanidine) at night are the only two CP meds I'm taking now.  I'm doing better than I have been in years.
> 
>Enough about me, what about everyone else?  Bring me up to date on everything.
> 
>Kyle
>
>________________________________
>
>
>---- Original message ----
>>Date: Fri, 28 Sep 2007 15:02:18 -0700
>>From: ken barber <[log in to unmask]> 
>>Subject: Re: Hello again 
>>To: [log in to unmask]
>>
>>we occasionally talk about cp if we have to.
>
>
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