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Subject:
From:
Jason Kruse PA <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 19 Sep 2002 09:50:14 -0500
Content-Type:
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Hello,
We just completed Laurens IEP yesterday for her
Kindergarten class. That particular class she was in
was one regular teacher and no para initially. They
did not have a ECD program at that school either.
Anyway the result of the IEP obviously touched on
laurens left handed fine and gross motor disabilities,
fatigueability with the hypotonia but what we were
mostly concerned about was the  interaction in the
class, listening, socialization. Who would of ever
thought that this would be our concern after all the
years of concern about her walking or talking:-)
Expressive language was high, receptive language was
low to average, there was a significant gap betweent
the two however. They did not feel that there was a
auditory or visual perceptive problem but that a
spatial awareness problem did exist. For example she
may not seem to see or move to make adjustments for
people in her way etc. Then there is the general lack
of social interaction with her peers.
She does well with older children and adults though.

The speech language pathologist states that there is
no good reason for how expressive language can be so
high but receptive so low except for participation
error to to attention span and focus. This I feel is
that unknown, the intangible that we have struggled
with her about. A seemingly bright personable girl who
has a distance about, lack of eye contact, a feeling
that what was said was not heard or confirmed by
traditional cues. They feel that some is selective,but
the other is more organic. Since she has been globally
delayed in most areas, I cant help but think that her
general maturity is low and there for attention is
also low. FYI she is 5 yr 3month so she is an early K
student.

Through recommendation we are going to transfer her to
a different school that is only pre and K with ECD
focus. She is coming from a class of 28 down to 19.
There is gen ed teach, a para, and a special ed
teacher that goes back and forth between 2 class next
to each other. Now my focus is developing her
attention as much as a parent can do. First thing is
getting the eye contact then I think alot of the other
listening, paying attention, focusing will improve but
we will work on them as well. Not sure exactly how but
that is our new project. I would be very interested to
hear others techniques or anecdotal experiences with
attention and focusing problems. I asked if they felt
this was attention deficit, aspergers, pdd and they
all said strongly that it is NOT, whewwww!!

Thanks

Jason Kruse
Lauren 5 yr 3m, left mild cp, hypotonia, no longer
wearing afos per ortho, short attention,global delay
Jason Kruse, PA
Family Medicine East
Heartland Research Associates
Kansas PA Temps

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