Yeah, that's pretty much what he uses the clonus for. It's sort of a joke to him, especially if he can start up against a table leg while his siblings are pouring something and get them to make a spill. I think his natural personality is class clown. He doesn't let the CP slow him down much at all. It took a bit to convince his PT and OT that he could stimulate the clonus, though. They kept talking about "involuntary reflexes," but a doc can stimulate those in a patient just fine.
So the "convenience" (for him) of certain gagging episodes makes me a bit suspicious....
Virginia
> Date: Tue, 9 Sep 2008 12:01:22 -0600> From: [log in to unmask]> Subject: Re: Good news> To: [log in to unmask]> > Virginia,> > I can't gag on command without a stimulus, but I have found that I can> stimulate the reflex fairly easily .(which can be as simple as recalling a> noxious memory). Luckily (or not?) I didn't discover or develop this> "ability" until I was an adult, so I wasn't able to use it to get out of> unpleasant situations as a kid. If I could have, I would have never played> dodge ball or tried to climb a rope in gym. I've used it as an adult only> because I accidentally swallowed some gasoline as I was siphoning out an old> lawnmower, and didn't have any Ipecac handy, and had too much grease on my> hand... Sorry if that's too much detail.> > I could also stimulate clonus in either leg as a kid by positioning (still> can), but it was more a "Wanna see the cool thing I can make my legs do?"> > On Tue, Sep 9, 2008 at 11:19 AM, Virginia Perry <[log in to unmask]> wrote:> > > Daniel uses Omnigel (a flouride application for sensitive teeth) because it> > doesn't foam and has almost no taste. Strong tastes also make him gag. We> > closely supervise the brushing process since we don't want him swallowing> > it.> >> > Question to those people with strong gag reflexes: Can any of you gag on> > command? If so, did any of you ever use gagging as a control strategy when> > you were a kid? I know there are certain flavors, textures, and> > temperatures that will cause my son to gag; however, sometimes when he is> > angry, it seems that he gags on purpose (to delay going somewhere or to> > force a clothing change or whatever). I know he can stimulate his clonus> > reflex, but I'm not sure about the gagging. I don't want to give him> > negative consequences for something that's not his fault, but the look in> > his eyes makes me suspicious sometimes....> >> > Virginia> >> >> >> > > Date: Mon, 8 Sep 2008 22:40:18 -0700> From: [log in to unmask]>> > Subject: Re: Good news> To: [log in to unmask]> > yeah, i have gag> > reflexes, with me, it's the foam of most toothpastes that does it. so I use> > a natural tooth powder, one side at a time, I use an oral B electric brush,> > as > my sonicare died after i dropped it only 4 times! I was pissed. the> > oral B holds up for two years before dying... battery must be changed every> > 2 to 3 months. > another plus is the oral B has a smaller brush, so does not> > make gag reflex come out. > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~>> > http://www.zazzle.com/TamarMag*> Tamar Mag Raine>> > [log in to unmask]>> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~> > > > ----- Original Message ---->> > From: Anthony Arnold <[log in to unmask]>> To:> > [log in to unmask]> Sent: Monday, September 8, 2008 9:55:03 PM>> > Subject: Re: Good news> > My whole family have Sonicares, and we have been> > happy with the results. I> believe we have to replace the brush heads every> > 3 months, which is quite> expensive but the dentist usually has deals. Also> > I think my mom gets them> at Sam's Club where you can get them in packs. >> > > Thanks, > Anthony Arnold > Remote Troubleshooter for PRC > 1-800-262-1984> > ext. 494> www.anthonyarnold.net> Proud Member of Speak Share> > >> > -----Original Message-----> From: Cerebral Palsy List [mailto:> > [log in to unmask]] On Behalf Of> ken barber> Sent: Monday,> > September 08, 2008 7:55 PM> To: [log in to unmask]> Subject: Re:> > Good news> > i have been using an interplaque for yearrs. it was> > discontinued and now i> use sonicare. > > > --- On Mon, 9/8/08, KE Cleveland> > <[log in to unmask]> wrote:> > > From: KE Cleveland <[log in to unmask]>>> > > Subject: Re: Good news> > To: [log in to unmask]> > Date:> > Monday, September 8, 2008, 8:23 PM> > Huh... I never thought about an> > electric brush. Thanks. > > I'll try that!> > > > Kyle> > > > On Mon, Sep> > 8, 2008 at 6:48 PM, Anthony Arnold> > <[log in to unmask]>wrote:> >> > > > > I had trouble with brushing before I switched to a> > electric> > toothbrush,> > > it's> > > a lot easier for my attendants.> > >> > >> > Thanks,> > > Anthony Arnold> > > Remote Troubleshooter for PRC> > >> > 1-800-262-1984 ext. 494> > > www.anthonyarnold.net> > > Proud Member of> > Speak Share> > >> > > -----Original Message-----> > > From: Cerebral Palsy> > List> > [mailto:[log in to unmask]] On Behalf Of> > > KE> > Cleveland> > > Sent: Monday, September 08, 2008 5:37 PM> > > To:> > [log in to unmask]> > > Subject: Re: Good news> > >> > > Cool,> > Anthony. I guess the gag reflex must be strong> > in a lot of CPers. I> >> > > know I have trouble with it. Do you have trouble with> > tooth brushing?> > I> > > can get through dental work only if I'm hooked up> > to a bottle of> > nitrous> > > oxide. It costs $75 out-of-pocket for the gas, but> > man is> > it worth it.> > > Glad your meds seem to be working for you.> > >> > > Kyle>> > > >> > > On Mon, Sep 8, 2008 at 6:20 PM, Anthony Arnold> > > <> > [log in to unmask]>wrote:> > >> > > > Friends,> > > >> > > > I have> > some good news I'm really proud of!> > Some of you may remember me> > > >> > mentioning that I had to go to the OR every time> > I had to have dental> >> > > work> > > > because of gagging. Today I needed to have a> > filling done> > and my dentist> > > > decided to attempt to fill it with having me> > awake,> > and to everybody's> > > > amazement I didn't gag or even move a muscle,> >> > and actually I told the> > > > dentist I enjoyed the experience and he> > laughed> > and said he hadn't ever> > > > heard that before. I credit the> > antidepressant> > I'm on, I'm so relaxed. I> > > > wish we would have tried> > a antidepressant or a> > relaxer years ago, but> > > > medicine wasn't as> > advanced 15 or 5 years> > ago.> > > >> > > >> > > >> > > > Thanks,> > > >> > Anthony Arnold> > > > Remote Troubleshooter for PRC> > > >> > > >> > 1-800-262-1984 ext. 494> > > >> > > > <http://www.anthonyarnold.net/>> >> > www.anthonyarnold.net> > > > Proud Member of > > <> > http://www.speakshare.com/> Speak Share> > > >> > > >> > > >> > > >> > > >> > -----------------------> > > >> > > > To change your mail settings or leave> > the C-PALSY> > list, go here:> > > >> > > >> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> > > >> > >>> > > > -----------------------> > >> > > To change your mail settings or leave> > the C-PALSY> > list, go here:> > >> > >> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> > >> > >> > -----------------------> > >> > > To change your mail settings or leave the> > C-PALSY> > list, go here:> > >> > >> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> > >> > > >> > -----------------------> > > > To change your mail settings or leave the> > C-PALSY list, go> > here:> > > >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> > > >> > > -----------------------> > To change your mail settings or leave the> > C-PALSY list, go here:> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> >> > -----------------------> > To change your mail settings or leave the C-PALSY> > list, go here:> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> > >> > -----------------------> > To change your mail settings or leave the C-PALSY> > list, go here:> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> > _________________________________________________________________> > See how Windows Mobile brings your life together—at home, work, or on the> > go.> > http://clk.atdmt.com/MRT/go/msnnkwxp1020093182mrt/direct/01/> > -----------------------> >> > To change your mail settings or leave the C-PALSY list, go here:> >> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy> >> > > > -- > > > Kendall> > An unreasonable man (but my wife says that's redundant!)> > The reasonable man adapts himself to the world; the unreasonable one> persists in trying to adapt the world to himself. Therefore, all progress> depends on the unreasonable man.> > -George Bernard Shaw 1856-1950> > -----------------------> > To change your mail settings or leave the C-PALSY list, go here:> > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
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