A little heart to heart talk with Voc, Rehab. wouldn't hurt either. As Michael grows older, he might choose a career that he physically can't do, and all the well wishers can not change that fact. :(
---- Original message ----
>Date: Fri, 10 Oct 2008 10:36:13 -0600
>From: "Kendall D. Corbett" <[log in to unmask]>
>Subject: Re: Hello/Question
>To: [log in to unmask]
>
>Dina,
>
>Kat's absolutely right about differences by state, so get in touch
>with your state human services or Medicaid office. You might also
>want to start looking at a "special needs trust" for your son. Those
>also vary somewhat by state so finding an attorney locally would be
>helpful. There are resources for kids with disabilities in
>educational settings that can be helpful, and networking with parents
>involved in those systems could be a great help. Id get in touch with
>your local school district and ask about a Parent Resource Center, or
>a Parent Information Center.
>
>
>A couple of good places to start getting information on what you and
>your son need to do to prepare for his future would be your state
>develiopmental disabilities planning council and the University Center
>of Excellence on Developmental Disabilities in your state. Here are
>links to the national organizations for both of those, so you can find
>information for your state:
>
>Association of University Centers on Disability:
>
>www.aucd.org
>
>And the UCEDD directory by state:
>
>http://aucd.org/directory/directory.cfm?program=UCEDD
>
>National Association of Councils on Developmental Disabilities
>
>www.nacdd.org
>
>and the member council directory
>
>http://www.nacdd.org/pages/councils.htm
>
>
>Another source that has links to a lot of really valuable information is:
>
>National Information Center for Children and Youth with Disabilities
>P.O. Box 1492
>Washington, DC 20013-1492
>1-800-695-0285 (Voice/TT)
>(202) 884-8200 (Voice/TT)
>
>http://www.nichcy.org/Pages/Home.aspx
>
>On Fri, Oct 10, 2008 at 8:11 AM, Dina Koblence <[log in to unmask]> wrote:
>> Good morning everyone!
>>
>> I have a son, Michael, who is five years old and is diagnosed with hypotonic
>> quadraplegic cerebral palsy. I agree with people in this group, that there is a
>> lot more information on and about children with cp than that of adults. But
>> even so, I feel that I have to "reinvent the wheel" with my choices for Michael
>> all the time. Maybe because each cp is very specific or maybe because I
>> haven't really found the right resources, I am not sure...
>>
>> Even though he is just five, I try to plan for his financial future now. In the
>> process I realized that I needed to know what governmental benefits he would
>> be eligible for once he is 18. Right now Michael is included in our family
>> insurance plan. How is it be to get a regular medical insurance coverage for
>> him when he is 18? What does Medicaid cover? Does it cover any of the
>> therapy? What Social Security benefits are there for a person with CP? Is
>> there anything else?
>>
>> I appreciate greatly any information you could share with me.
>>
>> Thanks,
>> Dina Koblence
>>
>> -----------------------
>>
>> To change your mail settings or leave the C-PALSY list, go here:
>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>
>
>
>
>--
>
>
>Kendall
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all
>progress depends on the unreasonable man.
>
>-George Bernard Shaw 1856-1950
>
>-----------------------
>
>To change your mail settings or leave the C-PALSY list, go here:
>
>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
-----------------------
To change your mail settings or leave the C-PALSY list, go here:
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
|
