no it does not bend it is a solid one
Thanks
John Runer
> Date: Fri, 24 Jul 2009 12:41:48 -0700
> From: [log in to unmask]
> Subject: Re: Upadate on Mary Runer
> To: [log in to unmask]
>
> Chester Worwa
>
> --- On Fr
> Just wondering. Does Mary's AFO bend?
>
>
> Chester Worwa
>
> --- On Fri, 7/24/09, JOHN RUNER <[log in to unmask]> wrote:
>
> > From: JOHN RUNER <[log in to unmask]>
> > Subject: Upadate on Mary Runer
> > To: [log in to unmask]
> > Date: Friday, July 24, 2009, 5:57 AM
> > Hello,
> >
> >
> >
> > My daughter Mary 9 has recently been confirmed by sleep
> > deprived EEG to have
> > Epilepsy on top of her CP..it is due to
> > excessive activity in her left hemisphere and seems to be
> > triggered by
> > fatigue. The neurologist is not medicating her yet as
> > she has only had
> > one confirmed seizure ( he is having us call if we even
> > suspect another seizure
> > and will start her on meds at that time, he is also having
> > her come in every
> > couple of months for tracking). Mary also
> > had a second pulmonary
> > function test and it confirmed a twenty percent reduction
> > in lung volume
> > capacity compared to her height and weight. Her
> > pulmonologist said to
> > keep her away from the larger cities as much as possible as
> > she is very
> > sensitive to air pollution and we live at high elevation
> > above the smog. At
> > this point Mary does not require oxygen but she did until
> > around two and a
> > half. Mary has her right ankle afo and actually loves
> > it! She is
> > not tripping her self now. We also
> > recently started a special needs
> > trust for her. I sat and cried about the epilepsy as
> > I used to have grand
> > mal seizures and still shake on occasion. I took
> > Phenobarbital and it was
> > terrible, apparently if she starts meds now they are much
> > better.
> >
> >
> >
> > Thanks,
> >
> >
> >
> > John Runer dad to Mary RH, cognitive delays, Epilepsy
> >
> >
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