I thought that the falling sensation were nightmares.  I used to hear
bells and other loud noises when I felt like I was falling.  I even told
this to a priest who told me that these were the worst type of nightmares
in the world.

On Tue, 28 Sep 1999, Joy C. Liebeskind wrote:

> Cindy- another thought- you know as you fall asleep you sometimes startle-
> look up & it ends--Well CP kids are not always aware where in space they
> are- or able to stop that falling sensation--Sarah has that problem..and is
> sure she is "falling up to the ceiling"  I can tell you at 80 lbs. she is
> not- and at age 11 she will laugh about it- but not as it happens as it
> scares her...sometimes she doesn't open her eyes but is screaming--  She
> sleeps with me- so most of the time- if I roll her on her side & hold her it
> will end fast--Joy
> ----------
> >From: Anee Stanford <[log in to unmask]>
> >To: [log in to unmask]
> >Subject: Re: (no subject)
> >Date: Tue, Sep 28, 1999, 2:51 PM
> >
>
> >Dear Cindy-
> >
> >The usual rule --if there is a usual rule in all of this--concening
> >spasticty/spastic CP at night is that there is actually less spasticity at
> >night/when sleeping.  This is one reson that TES is used at night because
> >spaticity is less durring sleep.  The same is also true --usualy-- of
> >athetoid CP--that there is less uncontrolled movement at night/when sleeping.
> > Of couse we all know that there are no "rules" that hold all the time in any
> >one case of cerebral palsy no matter what type.
> >
> >It could be something elce that you can not determin besides the CP
> >(something as simple as bad dreems or maby she is just going through a
> >"stage", or a undetected medical problem not related to CP)  or it could be
> >the CP, after all Lizzy at this stage probably dose not have adaqute
> >vocabulary to tell you exactly what is wrong (I am assuming that she can
> >talk--if she can't ignore what I just said).  Have you talked with her
> >peditrition about these lastest developments?
> >
> >Yours,
> >
> >Anee Stanford
> >Webmaster of CPIC
> >http://www.geocities.com/aneecp/CPIC.html
> >
> >In a message dated 9/28/1999 12:15:34 AM Central Daylight Time,
> >[log in to unmask] writes:
> >
> ><< Hi all.
> > I have a question for any and all of you, As some of you know, my daughter
> > Lizzy Jo is 20 mo and has mild spastic CP.  Hopefully this does not sound
> > stupid or really dumb.  But I was wondering...... When you are sleeping ...
> > can or does the CP cause pain( tightening up....)?  She use to sleep through
> > the nite, but when she hit a year old, we have periods where she wakes up 3
> > or 4 times a nite.  She has all of her teeth so it can't be that.... alot of
> > the time its her cry, like shes in pain.  We are in one of these modes now,
> > so out of desperation to try to figure it out, the other nite gave her a dose
> > of motrin before bed and she slept straight through, not wanting to drug this
> > poor child all the time, this question acured to me.  have asked her docs and
> > therapist this before, but was not satisfied with answers, Doc said no( the
> > same ones that it took 6 months to convience something was wrong) and the
> > therapist said she didn't know.  So I'm now asking the experts.(gigggle)  Any
> > ideas??
> > Thanks
> > Cindy Bushnell and Lizzy Jo >>
> >
>