let us read a few pages to whet our appitites.
-----Original Message-----
From: Mariana Ruybalid [mailto:[log in to unmask]]
Sent: Tuesday, March 14, 2000 2:23 PM
To: [log in to unmask]
Subject: Re: Different take on being "disabled"
Trisha,
I'm fine this days. I have chosen a radically different path
from my
mother's path.
Yes, I have cerebral palsy, but I do much more than my mother ever has
done, because
I assume that I will figure out how to do what I really want to do. Like I
went to Hawaii for my 50th
birthday and I had a marvelous time. I am also writing a novel.
Vaya con la diosa,
Mariana
At 06:04 PM 3/13/00 -0500, you wrote:
>Hi Mariana,
>
> Your CP is neither good nor bad - it simple is. Things only have the
>value we place on them. He has made a positive out what others see as a
>negative when in truth no value judgement needs to made at all. I don't see
>Amber CP or Betty's PN - as anything other than a facet of them. It carries
>no good or bad - it simply is. I have made an effort to never place a value
>judgement -if I possibly can - I have watched how children pick their cues
>of how to act from us. If we see something as bad - they do - if we see
>something as good - they do. Case in point - falling down. Purely an
>accidental thing too. Amber fell down as a toddler - and it looked funny -
I
>laughed and she turned around and saw I was laughing and laughed to and got
>up and toddled over to me. She took her cue of how to act from my reaction
-
>had I been horrified - she would have started crying. I saw this happen
>later and the woman woefullly over-reacted - and her kid who had merely sat
>down to hard -looked at her and then began screaming and was inconsolable.
>To this day when Amber falls (and me too) - we laugh - and she did just
take
>a header on the church stairs - not last Friday but the Friday before - and
>she turned around and we laughed. We do fix boo-boos if they happened. But
>we put stuff in prespective and remove the judgements - they are what hurts
>others. We all live for the positive - the love, the approval, the praise -
>the things that say we are worthwhile. I am sorry your mother chose to take
>the negarive path - you are wonderful and talented - and that is what is
>important about you.
>
> Brightest Blessings and Hugs
> Trisha
>
>> I cried when I saw David Roche performed in public. If
his
>>disability is a gift, then I need to rethink mu attirude about having CP.
>I >need to stop buying into my mother's appraisal "CP is a curse" abd
>>society's apprasal "What is wrong with you?" I tend to see it as one of
>>the many cards in the hand I was dealt. What matters most is how I >play
>my hand. David Roche
>>got dealt some deuces but he has played that hand to the utmost!
>>Vaya con ka diosa,
>>Mariana
>>
>>At 10:19 AM 3/11/00 -0500, you wrote:
>>>I am un_ ashamedly stealing this from the OUR KIDS site - PS I ask!!
>This
>>>is super - made me cry. Perhaps someday someone can do this for those of
>us
>>>are freaks to society by virtue of happenstance - incest - rape, extreme
>>>abuse - souls can be just as disabled and deformed as bodies can, and
just
>>>as in need love and understanding. May the God of the Once Born - forgive
>>>them for their ignorance and judgemental arrogance treating us like filth
>>>and second hand trash. Goddess Bless to my Systers who make the
CovenStead
>a
>>>safe and loving place - If we only do this for the world.
>>>
>>> Brightest Blessings
>>> Trisha
>>>
>>>
>>>>http://www.davidroche.com/index.htm
>>>>
>>>>This man, David Roche, was born with an extensive benign tumor on his
>>>face,
>>>>and the treatments he was given in infancy and childhood seem to have
>made
>>>>things even worse. He has no lower lip, the lower portion of his face
>>>>stopped growing because of radiation treatments, and he is covered with
>>>>plum-purple burn scars. He is 55 now, and speaks publically about how
>>>people
>>>>with facial deformities (any obvious disability) have to deal with it on
>>>the
>>>>outside, which may give them an advantage over those whose flaws are
less
>>>>openly obvious. He uses his gifts (including, he believes, the gift of
>his
>>>>disability) to inspire public speaking and humor on the topics which we
>all
>>>>know very well.
>>>>
>>>>His worldview will not be to everyone's taste, especially not to the
>taste
>>>of
>>>>those who are in especially bitter phases (we all go through them, and
>few
>>>of
>>>>us set them entirely aside)--but in his words, "My face thus becomes a
>>>gift,
>>>>not only for myself, but for others, as their hearts open to courage,
>>>>inspiration and laughter. I am proud to be part of the emerging culture
>of
>>>>disability. I believe in the healing power of humor and storytelling."
>I
>>>>enjoyed his site, and the article about him on Salon.com's website, url
>>>>http://www.salon.com/mwt/col/lamo/1999/05/27/sincerity
>>>>
>>>>Just thought some of you would like to see this; I hope my son is as
>>>>accepting of himself as he is, when he is grown, as this man is.
>>>
>
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