Anu,
My daughter was in pain for about 2 weeks but it got better everyday. She needed to have it because I could see when she walked she couldn't move her legs easily, she still has a slightly different walk than people without CP but she can ambulate on her own, runs and hasnt used her special stroller in a long time. good luck I will pray for your daughters speedy recovery
Dawn
________________________________
From: Anu Arsalo <[log in to unmask]>
To: [log in to unmask]
Sent: Tue, February 16, 2010 1:47:19 PM
Subject: Re: Rare: Intro/ ? hip dysplasia
Thanks Dawn for your story. It's good to know. We won't even know until
Friday if she is a candidate for surgery, but the referring doctor seemed to
think so. How long was your daughter in pain?
Anu
On Tue, Feb 16, 2010 at 10:24 AM, Dawn Cottone <[log in to unmask]> wrote:
> hello Anu,
> my daughter has mild CP also , she had hip surgery when she was 6. She
> had what is called a Osteotomy, it wasn't actually the same type of hip
> surgery your daughter will have but she needed phsycial therapy for over 7
> months. She also had to go back a year later to take out the hardware so it
> wouldn't stunt her growth. It was a very tough time, she was uncomfortable
> and my husband and I had a hard time seeing her in pain. but it is almost 3
> years and she walks so much better and her balance is better. she even
> thanks us for having the surgery done. so my point is it may be tough at
> first but I think your daughter will benefit from it.
> Dawn Cottone
>
>
>
>
> ________________________________
> From: Anu Arsalo <[log in to unmask]>
> To: [log in to unmask]
> Sent: Tue, February 16, 2010 11:10:03 AM
> Subject: Intro/ ? hip dysplasia
>
> Hello,
> My name is Anu and I have a 10 year old daughter Tuisku who has mild CP.
> Her
> right ventrical is abnormally enlarged and that has effected her left side.
>
>
> This was diagnozed at 3, but I new since she was a baby that something was
> wrong. I just wasn't take very seriously. My daughter also has Down
> syndrome and that has been our main concern. Tuisku walks with a limp and
> is all together lobsided, her ankle does not flex well, her left leg
> appears shorter and shoe size is smaller. Tuisku wears shoe inserts, and
> at
> one point was recommended more extensive support, but that was pulled. She
> was even recommended e-stim, but the insurance didn't cover it.
>
> Now Tuisku has started to walk with more and more a limp, she complains
> about pain daily, her back hurts but especially her hip. We saw an
> orthopedic doctor who told us that she has hip dysplasia and might require
> surgery. We will see a specialist this friday to find out more. However,
> I
> wanted to reach out here to see if any of you have had this done to your
> children and could share about your experiences.
>
> My daughter is active and independent. She can walk, run and ride a bike.
> She is an avid swimmer. It is my understanding that this surgery will have
> a very long recovery time, she might have to be in a body cast for long
> time. I hope somebody has better news for me. Also did the surgery work?
> Was it all worth it.
>
> Thanks in advance.
>
> Anu and Tuisku (10, CP and Ds)
>
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