I think - or instead of saying anything about what other people on the list  
might feel, I'll just speak for myself.
 
I've had people feel sorry for me and assume I have a poor quality of life  
simply because I walk differently.
A new neighbor of mine was really nice and I was happy to have a  friend - 
but it turns out he just felt sorry for me.  After having enough  of that type 
thing happen, it's very easy to get defensive when I hear anything  about 
"quality of life."  It becomes an automatic reaction that can cloud  other ideas.  
It just gets old having to defend your own quality of  life.
 
Your situation is different than mine.  As a parent, you're afraid for  your 
child.  Also, I know her care is hard - just physically, caring for  someone 
with a lot of needs is draining.  I know because I used to work  with an adult 
who needed total physical care.  The stress of it was hard  for me and for 
someone who has total responsibility....I can't imagine.   So, I think your 
questions and thoughts are natural for someone in your  position.  It doesn't mean 
you love your daughter less or even that you  question it all the time.  Maybe 
you just have moments of  frustration.
 
May I ask what state you are in?



**************It's Tax Time! Get tips, forms, and advice on AOL Money & 
Finance.      (http://money.aol.com/tax?NCID=aolprf00030000000001)

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy