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Subject:
From:
Gary Peterson <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 2 Feb 1999 20:45:50 -0800
Content-Type:
TEXT/PLAIN
Parts/Attachments:
TEXT/PLAIN (85 lines)
Might it be posible  for your  husband to get someone to live-in?  You
say he doesn't think there's a problem, but one would hope he would
take the safty and comfort of you're children more in mind in a
situation with as much at stake as this.

Best of luck to you-Gary


On Mon, 1 Feb 1999, Asdis Jenna Astradsdottir wrote:

> get a service-dog for your husband, the dog hears the kid's all movements.
> Try 1 firm Paws with a Cause
>
> >> -----Original Message-----
> >> From: R. Hintz [SMTP:[log in to unmask]]
> >> Sent: Saturday, January 30, 1999 2:10 AM
> >> To:   [log in to unmask]
> >> Subject:      Deaf/"Head-injuried" /CP Parent & Safety Issues(long)
> >>
> >> I have 2 children, 3& 5 & am in the middle of a divorce. I have worked
> >> professionally to support the rights of parents with disabilities. My
> >> husband
> >> & I both have CP. He also has a severe hearing impairment, ADHD & has been
> >> diagnosed with several cognitive impairments including memory, information
> >> encoding & personalities disorders. He basically functions like a person
> >> with
> >> a closed-head injury or TBI in that his behaviors & judgment are very
> >> inconsistent. He is also on high doses of meds which make it very
> >> difficult to
> >> wake him up. I wish to emphasize that he has resisted all rehabilitation
> >> efforts at work and at home.
> >>
> >> But now he is seeking overnight visits with both children who are both
> >> seriously asthmatic. We are seeking a GAL (child advocate). However, if
> >> that
> >> fails, I am looking for ways to deal with emergency situations which would
> >> work independent of him to keep the children safe. For example, fire. He
> >> says
> >> he has a smoke detector with a flashing light. However, this may not wake
> >> him
> >> up & he is very slow to respond. He has never woken up independently to
> >> care
> >> for the children.
> >>
> >> 1). I've heard there are smoke alarms that can notify the fire department
> >> directly. He lives in an apartment so a security system may not be an
> >> option.
> >> If it exists, where can I get it?
> >>
> >> 2). He cannot hear the apt. buildings fire alarm & this has been
> >> demonstrated.
> >> This is a large apt. complex. Any ideas?
> >>
> >> 3). He cannot hear the children wheeze or cough even when he's awake. Its
> >> worst @ night. Are there baby cry alarms that can pick up wheezing?
> >>
> >> 4). Are there ways to notify 911 personnel of these issues so they can
> >> respond
> >> appropriately to a medical emergency?
> >>
> >> Addressing these issues & others would be most helpful. The hearing on
> >> GAL/
> >> overnights is on 2/2.
> >>
> >> Again, the solutions cannot rely on him. He totally denies there are
> >> concerns
> >> & even when modifications or accommodations are put into place, he doesn't
> >> use
> >> them.
> >> Thank you for any assistance
> >
> >
>
> Asdis Jenna Astradsdottir
> [log in to unmask] at my home and [log in to unmask] at school.
> Tjarnarmyri 15
> 170 Seltjarnarnes
> Iceland.
> phone/fax 354-5611659.
> cellphone 354-6981659.
> * NEVER GIVE UP! * :-)
> THE WORLD IS WONDERFUL!
> GOD IS WITH YOU EVERYWHERE!
>

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